Barriers and Solutions to Neonatal Follow-up of High Risk Infants
|Principal Investigator: Sarah Winter|
|Keywords: Neonatal Follow-up , Prematurity||Department: Pediatric Administration|
|IRB Number: 00061350||Co Investigator:|
The purpose of the project is to identify trends of attendance as well as barriers to Neonatal Follow up Program (NFP) participation for high-risk infants in the state of Utah. An additional purpose of this project is to provide the NFP with specific recommendations for improving the program’s participation of qualifying children and their families.
Four focus groups will be conducted. Group one will be held at Primary Children’s Medical Center (PCMC) and will consist of discharging and referring NICU professionals in Salt Lake City. Group two will be conducted at McKay Dee Hospital and will consist of discharging and referring NICU professionals in Ogden. Group three will consist of families participating in the NFP program at the Salt Lake City location. Group four will consist of families participating in the NFP program at the Ogden location.
The purpose of the focus groups involving NICU professionals is to obtain qualitative data regarding the professional’s baseline knowledge of what the NFP offers, and to identify any potential barriers to participation in the program from the perspective of the professionals. The purpose of the focus groups involving participating families is to obtain qualitative data regarding the family’s perceptions of the value of the program and to identify barriers to attendance.
Participant selection for the focus groups of NICU professionals will be accomplished via purposive sampling involving NICU professionals from two different geographical areas in Utah with lower NFP attendance rates which included: Primary Children’s Medical Center and McKay Dee Hospital. Professionals will be selected based on having a role in the NICU discharge planning process. This will include NICU professionals such as discharge planners, neonatal nurse practitioners, neonatologists, social workers, and developmental therapists (Physical Therapists/Occupational Therapists/Speech Pathologists).
Participant selection for the focus groups of participating families will be accomplished via a random sampling of parent/caregivers currently attending NFP clinics in the same two geographical areas as the NICU’s. Families will be invited to participate via a method of randomization with the final selection based on the family’s acceptance of invitation to participate. The randomized invitation process will occur during the Salt Lake City and Ogden NFP clinics in January and February of 2013.
Only participants 18 years old or older will be included.