Patient Stories

The Utah HHT Center is pleased to give our patients with HHT a chance to share their experience with others living with HHT. We hope these stories help you with your journey.

Sandy’s Story

A Nosebleed Solution: I can't believe that something so very simple could change my life so very much. Cotton balls gave me my life back. Read more...

Chris’s Story

Genetic Testing: Genetic testing has allowed us to screen for potential complications before they cause a disability and to allow us to treat (antibiotics) and hopefully prevent disability... Read more...

Brandon’s Story

Confusing Symptoms: My son, Brandon, was diagnosed with pneumonia in 2004. We mentioned to the doctors that we had a genetic disease in the family (HHT) and asked if that could be contributing to [his] low oxygen saturation …  Read more...

Ron’s Story

Young’s Procedure: On September 1, 2005, I went in for surgery…and had nose closure surgery (the Young's procedure). It now has been over three years since I received this surgery and it has changed my life for the better… Read more...