The Hereditary Gastrointestinal Cancer Registry (HGCR) at Huntsman Cancer Institute is a resource for patients who have a strong personal or family history of cancers of the gastrointestinal (GI) system: stomach, small bowel, pancreas, colon, or rectum.
Our more than 1,900 HGCR participants are from families with both known and unknown syndromes and causes of cancer. These include familial adenomatous polyposis (FAP,) hereditary non-polyposis colorectal cancer (HNPCC or Lynch syndrome,) Cowden syndrome, Hyperplastic Polyposis, Juvenile polyposis, and Peutz-Jeghers.
Participants take part in a variety of research efforts to understand why they are at increased risk and what can be done to prevent cancer. Many are from the western part of the United States with about half from Utah. We also have participants from the Midwest as well as southern and eastern states.
The HGCR aims to
Hereditary Gastrointestinal Cancer Registry
Huntsman Cancer Institute
University of Utah
2000 Circle of Hope, RM 1132
Salt Lake City, UT 84112-5550