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Our Program

The Hereditary Gastrointestinal Cancer Registry (HGCR) at Huntsman Cancer Institute is a resource for patients who have a strong personal or family history of cancers of the gastrointestinal (GI) system: stomach, small bowel, pancreas, colon, or rectum.

Our more than 1,900 HGCR participants are from families with both known and unknown syndromes and causes of cancer. These include familial adenomatous polyposis (FAP,) hereditary non-polyposis colorectal cancer (HNPCC or Lynch syndrome,) Cowden syndrome, Hyperplastic Polyposis, Juvenile polyposis, and Peutz-Jeghers.

HGCR Syndromes 

Participants take part in a variety of research efforts to understand why they are at increased risk and what can be done to prevent cancer. Many are from the western part of the United States with about half from Utah. We also have participants from the Midwest as well as southern and eastern states.


Our Goals
The HGCR aims to

  • Better understand familial cancer by defining molecular and clinical characteristics. Provide resources for participants, including current information and ongoing studies. Serve as a resource for research studies.
  • We collect blood samples, medical records, family histories, and sometimes tissues removed during surgery to study the genetics of familial cancer and syndromes. We hope the scientific knowledge gained from current and future studies will benefit participants, their families, and generations to come.
  • If you have a personal history of colon cancer before the age of 50 or family members with familial GI syndromes, please contact us to learn more about the registry.

Hereditary Gastrointestinal Cancer Registry
Huntsman Cancer Institute 
University of Utah 
2000 Circle of Hope, RM 1132 
Salt Lake City, UT 84112-5550 

Toll-free 877-422-6860