ATHN Registry for Bleeding Disorders

Principal Investigator: Hassan Yaish
Keywords: Hemophilia Department: Pediatric Administration
IRB Number: 00069962 Co Investigator:  
Specialty: Hematology/BMT
Sub Specialties:
Recruitment Status: Recruiting

Contact Information

Kolenya  Holly
kolenya.holly@hsc.utah.edu
(801)734-0165

Brief Summary

Characterize populations with bleeding disorders receiving treatment at HTCs by collecting routine clinical information in order to monitor health indicators of importance to the bleeding disorders population.

Inclusion Criteria

All persons with a bleeding disorder diagnosis who receive care at an HTC are eligible for inclusion in the data collection effort. Eligible diagnoses include hereditary factor VIII deficiency, factor IX deficiency, VWD, certain rare bleeding disorders, and hereditary/functional platelet disorders.

 

Exclusion Criteria

none