About the Young Adult Cancer Caregiver (YACC) Social Media Study

We recognize that cancer can be challenging for families and friends of cancer patients, too. Through this study we are trying to find out how young adults use social media, like Facebook and Twitter, after their loved one is diagnosed with cancer. We want to make it easier for the people who take care of cancer patients to also take care of themselves.

What is the YACC Social Media Study?

Taking care of a cancer patient as a young adult is a unique experience. Many young adults might not expect that they will take care of a cancer patient. They might also be taking care of young children, finishing their education, or starting new careers. We know that people who help take care of cancer patients need support, but we know very little about how young adults get help from their friends, family, and other people in their lives.

This study helps us learn how to help young adults find the information, emotional, and social support they need when their loved one is experiencing cancer. We want to learn more about how using social media might help or hinder young adults who take care of cancer patients. But, we need your help!

How do I take part?

If you take part in this study you will talk with a researcher over the phone for about 60-90 minutes. For the first part of this study you will talk about things like how you take care of your loved one with cancer and how you use social media. You will also discuss details about yourself and your loved one's cancer diagnosis. For the second part of the study, you will allow the researchers to collect your old social media posts from the first six months after your loved one was diagnosed with cancer. All of your social media posts will be kept confidential and will only be used for research purposes.

I am eligible if I am:

  • Between the ages of 18-39 years
  • Using Facebook or Twitter at least once in the last week
  • Able to speak and understand English
  • Providing direct care to a cancer patient. For example, you might attend appointments, help with medications, bathing, and/or feeding, or provide financial support.

And, I have a loved one with cancer:

  • Was diagnosed with first cancer about 6 months - 5 years ago
  • Is at least 18 years of age or older

Other details:

Taking part in this study is voluntary. You may stop at any time. It will not affect your, or your loved ones, medical care or relationships with healthcare providers or the University of Utah.

There is no cost to be in this study. If you take part, you will receive a $5.00 Amazon gift card to thank you for your time.

Contact information:

For more information or to take part in the study please contact Echo Warner at 801-244-7040 (phone call or text message). You can also contact Echo at echo.warner@hci.utah.edu.

Echo is a pre-doctoral fellow at the University of Utah College of Nursing and a Graduate Research Assistant in the Cancer Control and Population Sciences Department at the Huntsman Cancer Institute. This research is for her doctorate degree.