Ataxia

For the people with Ataxia and the people who care about them; for more information, contact the following:

Lisa Ord
Phone: 801-585-6635
Email: lisa.ord@hsc.utah.edu

Jenny Durrant
Email: jennywdurrant@gmail.com

Dystonia

Find the Missing Pieces of Dystonia

Join the Utah Dystonia Support Group

The Utah Dystonia Support Group was created to offer both emotional and physical support to all those suffering from any form of dystonia along with family, friends, and caregivers. Share experiences about treatment and therapies, and keep updated on the latest research developments & treatment options on dystonia.

Do you still have unanswered questions?
Do you feel like you are the only one?
Do you want to speak with a specialist?

Meet with us

When: Second Wednesday of the month at 6pm
Where: Imaging & Neurosciences Center
729 Arapeen Drive, University of Utah Health Research Park

Salt Lake City, Utah

For questions and to join the group contact :
Karen Laners
Facilitator
Phone: 425-330-1380
Email: kmadry1234@aol.com

Huntington's Disease Society of America

What Huntington's Disease Society of America Provides:

"We provide vital support, information and educational services to improve the lives of those affected by HD, offer resources and guidance for HD families through our national network of volunteer-based chapters and affiliates as well as through our HDSA Centers of Excellence, which provide medical, psychiatric, social and genetic counseling services, and promote and support research to find a cure for HD."

- Huntington’s Disease Society of America

Please Join Us!

When: Second Thursday of each month at 6pm
Where: Imaging & Neurosciences Center
729 Arapeen Drive, University of Utah Health Research Park

Salt Lake City, Utah

New Season - New Ideas

Questions? Contact the following:

Keenan Gannon
Phone: 801-585-1311

Email: keenan.gannon@hsc.utah.edu

Paoloa Wall
Email: paola.wall@hsc.utah.edu

PSP & Atypical Parkinsonism Support Group

Our meetings are opportunities to:

  • Learn from professionals and each other about standard and innovative treatments
  • Provide emotional support and a few good laughs... AND, we have good parties and great people

Please Join Us!

When: Second Monday of each month at 6pm
Where: Imaging & Neurosciences Center
729 Arapeen Drive, University of Utah Health Research Park

Salt Lake City, Utah

Group Contact:
Rebecca Starks

Phone: 801-585-2354

Email: rebecca.starks@hsc.utah.edu

Tourette's Syndrome Association

The Utah Chapter of the Tourette's Syndrome Association