General Resources
The Utah Program for Inherited Neuromuscular Disorders (UPIN) improves the lives of men, women, and children with inherited nerve or muscle disorders through cutting-edge, multidisciplinary care and translational research.
The Muscular Dystrophy Association studies muscular dystrophy, ALS, and related diseases and advocates for high-quality patient care. The Muscular Dystrophy Association has a national chapter and a Utah chapter.
Medical Home Portal provides resources and information for parents and health care providers of children with special health care needs.
Treat NMD Neuromuscular Network works with industry, academia, and patient advocacy groups to improve diagnosis and treatment of individuals with neuromuscular diseases worldwide.
The Utah Parent Center helps parents of special needs children access education, resources, and support in the community and nationally.
Ability Found aids people with disabilities by giving them equipment and tools to live a more independent and fulfilling life.