dr follow up

What is the Heart Center Neurodevelopmental Program (HCNP)?

The Heart Center Neurodevelopmental Program (HCNP) is a multidisciplinary program that includes cardiologists, developmental pediatricians, psychologists, physical and occupational therapists, speech and feeding specialists who work together to provide developmental care for patients and families living with congenital heart disease. The HCNP provides both inpatient and outpatient services at Primary Children's Hospital. The HCNP is supported by the clinicians from the University of Utah Health, Primary Children's Hospital and Intermountain Healthcare.

Why is my child being seen in the HCNP Clinic?

The American Heart Association (AHA) recommends that all high-risk children are evaluated at 12-24 months, three-six years and nine-12 years. High risk children are those with cyanotic heart disease, open heart surgery as a newborn or other risk factors associated with congenital heart disease. Supporting Development in Children With Congenital Heart Disease

Are the HCNP clinic services covered by insurance?

Many of the services provided at HCNP clinic are covered by insurance. Regardless, for those services not covered, families or insurance holders are not balanced billed. Therefore, you should never receive a medical bill from the HCNP clinic.

How often will we be coming to HCNP Clinic?

Children are evaluated at four time frames. The first time is just after the child is born, often this happens in the ICU. This is a gentle test of how the baby responds to being comforted and held. The second visit is at 18-24 months and evaluates how the child solves problems, motor skills, socializes, and communicates. The third visit is at around four years of age and evaluates school readiness, behaviors, and language. The final visit is at around 12 years of age which evaluates the child’s intellectual, age-level self-care skills, executive functioning (e.g., ADHD related), and academic abilities (i.e., learning disability related). In addition, the child and family reports on their quality of life using a questionnaire designed specifically for children with congenital heart conditions.

How do I get the results of the neurodevelopmental testing performed in the clinic?

Results of the Heart Center Neurodevelopment Program will arrive in the mail in a summary document around four-six weeks after your appointment. From each provider you saw at your visit there will be a summary of the most significant findings and recommendations. The only exception to this would be for psychology, who will provide a personal follow up appointment. This appointment can be done in person or via Telehealth (with testing finished the child does not have to be at this appointment). At this follow-up appointment, you and the psychologist will meet to cover a detailed report that will be written and provided to you. This report can be used in conjunction with school planning or other therapies you child may be seeking.

If my child has already received testing at school, how do I share the information with the HCNP staff?

It is strongly recommended that if your child has already received any previous testing that it be shared with the Heart Center Neurodevelopment program before your visit. This is vital for many reasons, among some of the biggest being that we do not want to repeat testing that has already been done with your child. Additionally, the testing information can allow the providers at the Heart Center Neurodevelopmental Program to fine tune the assessment to your child's profile for a better overall assessment. All previous testing can be sent securely faxed to the Heart Center Neurodevelopment Program at FAX 801-585-2209, phone 801-587-2255 or email udac@hsc.utah.edu.

If a problem is identified, how do I get the services that my child needs?

The providers at the Heart Center Neurodevelopmental Program will make recommendations based on the results of the outpatient clinic evaluations. Developmental services can be accessed in a variety of ways and are tailored to each child and family's needs. Our clinic staff can help you access free school based services such as an individual education plan (IEP) to help a student be successful in the educational environment or a 504 plan which ensures that your child receives the learning accommodations at school. We can provide you with resources in your community ranging from parenting classes to adaptive sports teams. Finally, if comprehensive outpatient therapy services we will make the appropriate referrals and help you to access those services.

How does my child's pediatrician and their school get this information?

The clinic will send the pediatrician or other primary care provider and the pediatric cardiologist a summary of the visit and test results. It is up to the parents of the child to make a copy and give the results to the school.

baby in clinicFamily Resources

Congenital heart disease can increase a child's risk of developmental and learning or behavioral disorders. In partnership with Primary Children's Hospital, our goal is to provide assessment, guidance and resources for you and your child.

Resources for Pediatricians

Early and often neurodevelopmental care is important for all children with complex congenital heart disease. Please see the information below regarding follow up criteria for children with congenital heart disease.

Referrals can be sent to the University Developmental Assessment Clinics via FAX 801-585-2209, phone 801-587-2255 or email udac@hsc.utah.edu.

Specialties:

General Pediatrics

Locations:

650 Komas
Neurobehavior H.O.M.E. Program
801-581-5515
Eccles Primary Children’s Outpatient Services Building 801-587-2255

Sean Cunningham, PhD

Dr. Cunningham currently serves as an Assistant Professor in the Division of General Pediatrics, University of Utah School of Medicine. He has dual graduate degrees in clinical and educational psychology and is licensed at the doctoral level as a psychologist in the State of Utah. His specializations revolve around the assessment, intervention and ... Read More

Danielle Friberg, MOT, OTR/L

Danielle is a pediatric occupational therapist with experience in neonatal follow-up, early intervention, community-based, and outpatient settings. Her professional interests include early childhood development/early intervention, sensory processing disorders, feeding disorders, education, and research. She loves working with children to make a pos... Read More

Kristi A. Lewis Glotzbach, MD

Dr. Glotzbach received her medical degree from Tulane University School of Medicine (New Orleans, LA) in 2005 and completed Pediatric residency at the University of North Carolina Children’s Hospital (Chapel Hill, NC) in 2008. She completed fellowships in both Cardiology at Lucille Packard Children’s Hospital (Stanford University) in 2011 and Criti... Read More

Specialties:

Pediatric Critical Care

Locations:

Primary Children's Hospital

Jori P. Harris, SLP

Jori Harris is a certified speech-language pathologist in the Department of Pediatrics at the University of Utah.    Jori graduated with her Masters of Science from Syracuse University.  Jori’s clinical work has included the assessment and treatment of children with a range of neurodevelopmental disabilities including children with Autism Spectrum ... Read More

Steven T. Lewis, AuD, CCC-A, F-AAA

Dr. Lewis is a licensed audiologist that has obtained his certificate of clinical competence (CCC) from the American Speech and Language and Hearing Association and is a current fellow of the American Academy of Audiology.  He received his undergraduate degree in Communication Disorders at Brigham Young University and his clinical doctorate in audi... Read More

Kendra M. Lystad, MD

Kendra Lystad, MD, received her undergraduate degree from the University of St. Thomas in Saint Paul, Minnesota and her medical degree from the University of North Dakota School of Medicine. She completed her pediatrics residency at the University of Utah. Currently, she sees patients at the University Developmental Assessment Center and the Neurob... Read More

Specialties:

General Pediatrics

Locations:

650 Komas
Neurobehavior H.O.M.E. Program
801-581-5515
Eccles Primary Children’s Outpatient Services Building 801-587-2255

Thomas A. Miller, DO

Dr. Miller received his medical degree from the University of New England, completed his residency in Pediatrics at Maine Medical Center and his fellowship in Pediatric Cardiology at the University of Utah. He underwent an additional year of subspecialty training in Advanced Imaging, focusing on fetal cardiology as well as research. He is currently... Read More

Specialties:

Pediatric Cardiology

Locations:

Primary Children's Hospital 801-662-1000

Quang-Tuyen Nguyen, MD

Dr. Nguyen received her medical degree from the University of California San Diego School of Medicine, and completed her Pediatric Residency at the Tufts Floating Hospital for Children in Boston, MA.  She stayed on as Chief Resident of her class.  Afterwards she has been in private practice for a large multispecialty group in the Seattle area.  She... Read More

Specialties:

General Pediatrics

Locations:

Eccles Primary Children’s Outpatient Services Building 801-587-2255
University Hospital
Pediatrics, Clinic 6
801-581-2205

Kelly Stout, PhD

Kelly Stout, Ph.D., Psychologist, earned her Doctorate of Philosophy from the University of Utah Educational Psychology program in 2004. She completed her internship in the Salt Lake City School District, where she specialized in identifying autism in the school age population. Dr. Stout also participated in the Autism and Psychoeducational Clinics... Read More

Carlee A. Walsh, PsyD

Dr. Walsh is currently a clinical psychologist at the University of Utah Developmental Assessment Center.  Her background includes specialties in the assessment and treatment of children who have experienced complex trauma and in the implementation of various evidence-based modalities for the treatment of childhood traumatic stress.  Her clinical i... Read More

Katrina Wheeler, SLP

Katrina is a clinically certified Speech and Language Pathologist in the Department of Pediatrics at the University of Utah. She received her master’s degree from Utah State University and spent 8 years working as a speech and language therapist in Davis school district and Salt Lake City school district. Her special interests include motor speech ... Read More

Sarah Winter, MD

Dr. Winter is a Neurodevelopmental Pediatrician and Associate Professor in the Department of Pediatrics at the University of Utah. Dr. Winter is board certified in Neurodevelopmental Disabilities and has special interests in children with cerebral palsy, spina bifida, and complex medical conditions, issues related to neonatal follow-up and early ... Read More

Heart Center Neurodevelopmental Program (HCNP)

Eccles Primary Children's Outpatient Services
(Check in, 2nd floor, station 4)
81 N Mario Capecchi Dr
Salt Lake City, UT 84113
Appointments
801-587-2255