Please ask your pharmacy to FAX a prescription refill request to our office at 801-213-7600.

Please allow two working days for prescriptions to be refilled.

We need to see our patients in clinic at least once a year in order to refill medications. Please bear this in mind and schedule follow up appointments well in advance.

A referring doctor or primary care provider must send in a request for a new appointment with pediatric neurology. Once this referral is received, patients can schedule an appointment.

Pediatric Neurology clinics are held in several locations in the Salt Lake Valley area. Not all providers or services are available at all locations. When scheduling your appointment, please make sure to inquire where your clinic visit will occur. Check the locations tab for more information.

First Appointment

On the day of your appointment, it is important that you allow at least 30 minutes to park and register. Please note that if you are late, we may need to reschedule your appointment. If you cannot make it to an appointment, please call our schedulers as soon as possible (801-213-3599). We can re-schedule your appointment and also try to fill that appointment time for someone else.

Please bring any medical records relevant to your child's care with you. This includes copies of laboratory testing, medical records, MRI, CT scans, or EEGs your child has had. It is very important to bring copies of the actual MRI or CT scan images on DVD or CD. These can be obtained from the facility where those studies were done. You may need to fill out a Release of Information and send it to the other physician's offices or other hospitals in order to obtain this information.

Since the information communicated during an appointment is often complicated and of great importance to you, we strongly recommend that you do not bring other children with you to the appointment.

At your child's appointment you will meet with a member of the pediatric neurology division and discuss a plan of care for your child. In some cases laboratory tests (such as blood tests) or medical imaging (such as brain MRIs) will be ordered. Many lab tests take three to eight weeks for results. We will contact you if any of the results are abnormal. At your child's next appointment we will discuss the results of all of the testing.

You may have copies of the neurology visit note sent to you. To do this, your child must have a Release of Information on file, updated every year. You can download this form, have it notarized, and sent to us to keep on file. Alternatively, you can ask to fill out this form at your clinic visit and submit it then.

Follow Up Appointments

Depending on your child’s condition, follow up appointments may be recommended with your primary care provider or in neurology clinic, or both. The follow up appointment will usually be shorter than your first visit. Many neurologists have full schedules so it is important to schedule an appointment at least three months in advance if your child needs a follow up visit.

Preparation

Here are the things families can do prior to the EEG visit to help us get the best quality EEG and the most helpful information from this test.

  1. Sleep deprivation (see below).
  2. No napping after waking - until the EEG is started.
  3. No sugar or caffeine after waking.
  4. Clean, dry hair; shampoo only.
  5. Bring the referral or pre-authorization with you to visit.
  6. Bring anything with you that the child might need to fall asleep. For infants, please bring their bottle, pacifier and diapers. For older children, bring their favorite blanket or anything else that comforts them.
  7. Have your child use the restroom right before being called back to start the EEG.

Sleep Deprivation

Sleep deprivation can help us see abnormalities on EEG, so we ask that patients be sleep deprived the night before their EEG. Here are some guidelines for sleep deprivation based on patient age:

Children 0-1 years: Put to bed 1 hour later, wake up 2 hours earlier

Children 2-4 years: Put to bed 2 hours later, wake up 2 hours earlier

Children 5-9 years: No more than 6 hours sleep prior to 4a.m.

What to Expect

The child and parent will be brought to one of our EEG lab rooms where the EEG technician will apply the leads with paper tape to the scalp. For longer EEGs, the leads may be glued on. There are no needles or pokes, and the hair is not cut or shaved! Once the EEG leads are in place, the EEG technician will ensure the signals are being adequately recorded and then start the monitoring.

During the EEG, we ask the child to do 4 things: open and close the eyes, hyperventilation, photic stimulation and sleep. Hyperventilation is done by having the child blow on a pinwheel for 3 minutes. For photic stimulation we use a flashing light directed towards the child’s face - they can close their eyes if they want. This is usually done at the end of the EEG. In the middle of the EEG we turn out the lights and try to have the child fall asleep. The EEG technician leaves the room but monitors the video and the EEG so we know when the child falls asleep. We minimize interruptions and noise during this part of the EEG so the child can stay asleep for at least 10 minutes - hopefully longer.

The entire study takes about 60 minutes. It may be longer if it takes the child longer to fall asleep. When the EEG is over, the EEG technician will take the leads off and the child can go home.

How to get EEG Results

Contact your Primary Care Provider for results. If your child already has a neurologist you can contact your neurologist.

Results are typically available one ot three days after routine EEGs are performed.

EEGs done overnight in the Rapid Treatment Unit (RTU) or over several days in the hospital can take two weeks for results to be available.

It can be difficult to know how to find resources for a child with complex medical problems. To start, families can contact our Social Workers for help with this. Other state programs and resources are available on-line, below.

Web Resources for Families

Utah Parent Center: Parents helping parents of children with disabilities

Medical Home Portal: Partnering families with providers in the care of children with chronic conditions

Utah Clicks: Online applications for state programs

Early Intervention: Developmental services for families of infants and toddlers, birth to age 3

Child Development Clinic: Consultation and case management for children with disabilities or behavioral problems.

Experiencing Stress?

A visit to the hospital can be frightening and intimidating for you and your child. Getting the best help can sometimes be frustrating. Social workers are available to support you and your child and help meet the needs of your family.

Social workers at Primary Children’s Hospital are available Monday through Friday from 8 am to 5 pm. They can be reached at 801-662-3701. Social workers are also available at Riverton PCH Outpatient Services; ask your provider or at the front desk for their availability.

Here are some of the services that our social workers can provide:

  • Assistance with transportation and temporary housing
  • Advice regarding financial concerns or insurance issues
  • Lending a listening ear when you are feeling stressed
  • Advice when you need someone to help you problem-solve, prioritize, or set goals
  • Support when your child needs help adjusting to the hospital
  • Advice if you need ideas to meet the needs of your other children at home
  • Assistance if you or your child is grieving a loss
  • Aid finding resources in the community
  • Resources for support and education groups

For emergencies: Call 911 or go to the nearest emergency room.

It is difficult to give strict guidelines about when to go to the emergency department (ED). In general, if you think your child is in immediate danger, you should call 911 or go (safely) to the nearest ED.

For urgent needs or general medical concerns: Contact your child’s primary care provider (PCP).

If your child’s PCP needs additional information or guidance, she/he can contact Pediatric Neurology for advice.

For daytime neurological issues: Leave a message for our nurse at 801-213-3599.

For daytime neurological issues: Contact our nurse at 801-213-3599. Our staff is available Monday-Friday, 8:00am-5:00pm. Our nurses are very experienced in pediatric neurology and can handle most patient-related phone calls. If they cannot answer your questions immediately, they will discuss the issues with the neurologist. Often the neurologist you want to speak with may not be immediately available, but he or she will address your concerns as soon as possible.

After hours, nights, weekends and holidays: Call PCH 801-662-1000 for the on-call neurologist.

The on-call neurologist or neurology resident can help you with urgent neurological problems that can’t wait until the next working day. This covers issues such as sudden change in seizure frequency, a child who vomited up medications, or other urgent problems.

Meagan Barrows, APRN

Meagan Barrows is a Certified Pediatric Nurse Practitioner through the Pediatric Nursing Certification Board (PNCB). She received both her Bachelor of Science and Master of Science degrees in nursing at Purdue University in West Lafayette, Indiana. Before becoming a nurse practitioner, she worked as a registered nurse for the Tippecanoe County Heal... Read More

Susan L. Benedict, MD, MS

Dr. Benedict completed her medical degree at Creighton University School of Medicine. She then completed her residency in Pediatrics at Creighton-Nebraska Universities and her Pediatric Neurology subspecialty fellowship training at the University of Utah School of Medicine. She is currently Associate Professor in Pediatrics and Pediatric Neurology... Read More

Specialties:

Pediatric Neurology

Locations:

Eccles Primary Children’s Outpatient Services Building 801-213-3599
PCH Outpatient Services at Riverton 801-213-3599
St. Vincent Healthcare
Pediatric Neurology
406-237-5340

Joshua L. Bonkowsky, MD, PhD

Dr. Josh Bonkowsky is an associate professor of Pediatric Neurology (Pediatrics) and of Neurology. His undergraduate training was at Harvard University; he obtained his MD and PhD degrees at the University of California, San Diego, and did his Pediatrics and Neurology/Pediatric Neurology training at the University of Utah and Boston Children's Hosp... Read More

Russell J. Butterfield, MD, PhD

Russell Butterfield, MD, PhD received his PhD in mammalian genetics, and medical degree from the University of Illinois. He completed his residency training in pediatric neurology at the University of Utah in June 2009. He is currently an Assistant Professor in the Departments of Neurology and Pediatrics, after completing a fellowship in neuromus... Read More

Specialties:

Muscular Dystrophy, Neurology, Neuromuscular Diseases, Pediatric Neurology

Locations:

Clinical Neurosciences Center 801-213-3599
Eccles Primary Children’s Outpatient Services Building 801-213-3599
Shriners Hospital for Children
Pediatric Neurology
801-536-3500

Meghan S. Candee, MD, MSc

Dr. Candee completed her medical degree at Albany Medical College after completing a Master's program in the Biochemical Bases of Nutrition at the Institute for Human Nutrition of Columbia University.  She then completed her pediatric residency and subspecialty training in pediatric neurology at the University of Utah, where she was a chief residen... Read More

Specialties:

Pediatric Neurology

Locations:

Eccles Primary Children’s Outpatient Services Building 801-213-3599
PCH Outpatient Services at Riverton 801-213-3599

Francis M. Filloux, MD

Francis Filloux, MD is Chief of the Division of Pediatric Neurology at the University of Utah School of Medicine and Primary Children’s Medical Center. He is responsible for administering the Division of Pediatric Neurology and is Program Training Director for the Pediatric Neurology Residency Program. Dr. Filloux is a general child neurologist who... Read More

Specialties:

Neurology, Pediatric Neurology, Psychiatry

Locations:

Eccles Primary Children’s Outpatient Services Building 801-213-3599
PCH Outpatient Services at Riverton 801-213-3599

Lynnette S. Fuller, PA

Lynn Fuller PA-C, RD, is one of our midlevel providers. She received a Bachelors of Nutrition and Dietetics from the University of Florida. She worked for seven years as a Dietitian with the Florida Department of Health (Women infants and Children Program), Private Practice in sports nutrition and at Primary Children's Medical Center (PCMC) on t... Read More

Timothy S. Garvey, APRN

Timothy S. Garvey received his Bachelor of Science degree in Psychology and Philosophy from the University of Wisconsin. He subsequently received his BS degree in Nursing along with an MS degree in Social Psychology at University of Utah in 2000. He participated and worked as an applied biostatistician and research collaborator at Valley Mental H... Read More

Specialties:

Pediatric Neurology

Locations:

Eccles Primary Children’s Outpatient Services Building 801-213-3599
PCH Outpatient Services at Riverton 801-213-3599

Nicholas Johnson, MD

Patient Rating:

4.4

4.4 out of 5

Nicholas Johnson, MD, is an Assistant Professor of Neurology, Pediatrics, and Pathology at the University of Utah with a focus in inherited neuromuscular disorders. He received his undergraduate degree in Molecular and Cellular Biology and Psychology at The University of Arizona. He then obtained his medical degree at The University of Arizona. He ... Read More

Lynne M. Kerr, MD, PhD

Dr. Kerr attended Yale University for her undergraduate education and there became interested in the complexities of the nervous system. She majored in neurolinguistics before going on to obtain her PhD in physiology at the University of Virginia. She moved to Utah to do a postdoctoral fellowship with Dr Doju Yoshikami in the Department of Biology.... Read More

Specialties:

Pediatric Neurology

Locations:

Eccles Primary Children’s Outpatient Services Building 801-213-3599
PCH Outpatient Services at Riverton 801-213-3599
Shriners Hospital for Children
Pediatric Neurology
801-536-3500

Michael B. Lloyd, MD

Dr. Lloyd was raised in Wyoming. He attended the University of Wyoming were he obtained a BS in Biochemistry and Microbiology. He then attended the University of Colorado were he obtained a Medical Degree and completed pediatric training. Dr. Lloyd worked as a general pediatrician for 7 years before deciding to obtain further training in Pediatric ... Read More

Specialties:

Pediatric Neurology

Locations:

Eccles Primary Children’s Outpatient Services Building 801-213-3599
PCH Outpatient Services at Riverton 801-213-3599

Clint Nelson, MD

Dr. Nelson received his medical degree from Baylor College of Medicine in Houston, Texas. He completed training in Pediatrics and Pediatric Neurology at the University of Utah and Primary Children’s Medical Center. He is board-eligible in both Pediatrics and Neurology (with special qualification in Child Neurology). He is currently an adjunct Assi... Read More

Specialties:

Pediatric Neurology

Locations:

Primary Children's Hospital 801-213-3599
Rock Canyon Pediatric Specialists
Pediatric Neurology
801-357-1700

Gary R. Nelson, MD

Dr. Gary Nelson is an Assistant Professor in the Department of Pediatrics in the Division of Pediatric Neurology at the University of Utah. He is a general child neurologist and sees patients with any neurological concerns. He has special interest in pediatric stroke, autoimmune and parainfectious neurological disease, quality improvement, and inpa... Read More

Specialties:

Pediatric Neurology

Locations:

Eccles Primary Children’s Outpatient Services Building 801-213-3599
Pocatello Children's Clinic 208-232-1443

Betsy Ostrander, MD

Dr. Ostrander received her medical degree from Loyola Stritch School of Medicine, completed her Pediatric residency at RUSH Medical Center and her Pediatric Neurology training at the University of Utah. She is currently an Assistant Professor of Pediatrics at University of Utah and is in the Division of Pediatric Neurology at Primary Children’s Hos... Read More

Specialties:

Pediatric Neurology

Locations:

Eccles Primary Children’s Outpatient Services Building 801-213-3599
PCH Outpatient Services at Riverton 801-213-3599

Matthew T. Sweney, MD, MS

Dr. Sweney is a pediatric neurologist and epileptologist who focuses on the diagnosis and treatment of drug-resistant pediatric epilepsy. He is Medical Director of the Comprehensive Pediatric Epilepsy Program at Primary Children’s Hospital. He is board certified in General Pediatrics, Neurology, Epilepsy, and Clinical Neurophysiology. He partici... Read More

Specialties:

EEG, Epilepsy, Long Term Monitoring, Pediatric Neurology

Locations:

Eccles Primary Children’s Outpatient Services Building 801-213-3599
PCH Outpatient Services at Riverton 801-213-3599

Cristina C. Trandafir, MD, PhD

Dr. Cristina Trandafir is an Assistant Professor in the Department of Pediatrics, Division of Pediatric Neurology at the University of Utah. Dr. Trandafir received her medical degree from the Carol Davila University of Medicine and Pharmacy in Bucharest, Romania. She completed her combined Pediatrics and Pediatric Neurology residency, followed by a... Read More

Specialties:

Pediatric Neurology

Locations:

A location has not yet been added by this physician.

Colin B. Van Orman, MD

Born and raised in southern Alberta, Canada, Dr. Colin Van Orman attended the University of Lethbridge, Alberta for undergraduate training and then obtained his MD degree from the University of Calgary. Subsequent training in Pediatrics and Pediatric Neurology was completed at the University of Calgary and the University of Utah. After almost two... Read More

Specialties:

Neurology, Pediatric Neurology

Locations:

Eccles Primary Children’s Outpatient Services Building 801-213-3599
PCH Outpatient Services at Riverton 801-213-3599
St. Vincent Healthcare
Pediatric Neurology
406-237-5300

Brandon A. Zielinski, PhD, MD

Brandon A. Zielinski, M.D., Ph.D. is an Arizona native whose early training brought him to Arizona State University (Tempe, AZ) and Georgetown University (Washington, DC). He attended medical school at the University of Colorado Health Sciences Center in Denver. He joined the Division of Pediatric Neurology in 2010 after completing his neurology an... Read More

Specialties:

Pediatric Neurology

Locations:

Eccles Primary Children’s Outpatient Services Building 801-213-3599
PCH Outpatient Services at Riverton 801-213-3599
Primary Children's Hospital 100 N Mario Capecchi Dr
Salt Lake City, UT 84113
Map
Appointments
801-587-7575
PCH Outpatient Services at Riverton

3741 West 12600 South
Riverton, UT 84065
Map

Appointments
801-587-7575
Clinical Neurosciences Center

175 N Medical Dr
Salt Lake City, UT 84132
Map

Appointments
801-587-7575
Utah Valley Regional Medical Center

1034 N 500 W
Provo, UT 84604
Map

Appointments
801-587-7575
Children with Special Health Care Needs

Satellite Clinics

Appointments
801-587-7575
Eccles Primary Children's Outpatient Services 81 N. Mario Capecchi Dr.
Salt Lake City, UT 84113
Map
Appointments
801-662-1000