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Fragile X Syndrome Clinic

Where We're Located

Primary Children’s Eccles Outpatient Building, Level 2, Station  4
81 N Mario Capecchi Dr
Salt Lake City, Utah 84113

University of Utah and Primary Children’s Hospital have created a FXS clinic to care for patients and families living with Fragile X. Our clinic serves the children of Utah and surrounding states where there is no FXS support available.

We take a team-based approach to your child’s care. Our clinical management and research studies provide cutting edge therapies. We offer psychological testing and genetic counseling and support. We will work with your local team to aid them in day to day management of your child’s care.

Our clinic is unique in that Dr. Wilkins’ family lives with FXS. We work hard to make our clinic safe, welcoming, and engaging for children with FXS. We work closely with the Child Life Adaptive Care teams to help children through their visits comfortably.

How Common is Fragile X?

Fragile X Syndrome (FXS) affects 1 in every 4,000 boys and 1 in every 6,000-8,000 girls. FXS is the most commonly inherited cause of developmental disability and autism.

Sign up for Research

Interested in a study? Contact us.

Email Victoria L. Wilkins, MD, MPH at victoria.wilkins@hsc.utah.edu 

A Relationship Created for the Best Pediatric Care

For pediatric specialty care, Intermountain Children's Health is affiliated with University of Utah Health. U of U Health physicians see patients at Primary Children's Hospital on campus, Lehi Primary Children's, and other locations throughout the Salt Lake City valley.

It's a shared mission of providing health care, education, and research. It comes to life through collaboration on clinical care, research, and educational programs.

Primary Children's Hospital operates as the main pediatric facility for the U of U Health system, providing care in more than 60 medical and surgical specialties such as surgery, oncology, cardiology, orthopedics, and others. Most of the providers at Primary Children's Hospital are faculty members at U of U Health.

This partnership delivers care to advance pediatric medicine while educating future generations of health care professionals.

Resources & Information

Appointment Scheduling

Call 801-587-2255 for an appointment.

Webinars & More Information

Fill out the form below to sign up for webinars, information, and updates about Fragile X Syndrome.