Amyloidosis Support Group
For patients, families, and friends
JOIN US FOR
- Q & A sessions with Amyloidosis experts.
- Tips to maintain quality of life with amyloidosis Information about clinical trials & therapies, and
- Group discussions
Saturday, June 27, 2020
8:30am– 2:30pm | 1st Floor Auditorium
The Primary Children’s and Families’ Cancer Research Center at Huntsman Cancer Institute
Keynote Speaker
About
The annual Utah Amyloidosis Support Group in Salt Lake City is provided by Amyloidosis Support Groups, Inc. in conjunction with the Utah Amyloidosis Program. We welcome patients, family members, friends, and anyone else effected by amyloidosis to join us. Group discussions, presentations and Q & A will focus on topics related to amyloidosis as well as caregiver concerns. The majority of topics will focus on AL Amyloidosis and TTR Amyloidosis (hereditary and age-related) but topics surrounding other diagnoses of amyloidosis will be discussed as well. Complementary breakfast and lunch will be provided courtesy of the Utah Amyloidosis Program.
All are welcome to participate but pre-registration is required by one of two options:
Call: Nico Cheek-O’Donnell, Social Worker at 801-587-4695
E-mail: Muriel@AmyloidosisSupport.org
Planned Program
–Content subject to change-
| 8:30– 9 am | Check-in and Light Breakfast |
| 9– 10:30 am | Welcome and Keynote Speaker Daniel Judge, MD |
| 10:30– 10:50 am | Break |
| 10:50– 12:30 pm |
Morning Session -Caregiver Breakout Session |
| 12:30– 1:15 pm | Lunch and Treatment Presentations |
| 1:15– 2:30 pm |
Afternoon Session -Patient Discussion and Q&A continued |
Location
*New location
The Primary Children’s and Families’ Cancer Research Center at Huntsman Cancer Institute
Parking
Parking is available directly in front of the Primary Children’s and Families’ Cancer Research Center in the outdoor strip parking. Do not park in stalls marked as 24-hour reserved.
This parking lot can be accessed by driving up North Medical Drive past University Hospital and taking the next right in front of the parking terrace. Go straight past the Clinical Neurosciences Center and stay left where the road will curve back into a parking lot directly in front of the Primary Children’s and Families’ Cancer Research Center.
Otherwise, visitors are welcome to park in the patient parking terrace however be aware that the walk will take approximately 5-10 minutes from this location.
RSVP, questions, comments, and concerns can be directed to either Nico Cheek-O’Donnell, Social Worker for the Utah Amyloidosis Program or to Muriel Finkel, President of Amyloidosis Support Groups:
Call: Nico Cheek-O’Donnell, Social Worker at: 801-587-4695
E-mail: Muriel@AmyloidosisSupport.org
Thank you to Muriel Finkel from Amyloidosis Support Groups Inc. for helping us put on this successful event for patients and others affected by amyloidosis on an annual basis. More about Amyloidosis Support Groups, Inc. can be found at their website amyloidosissupport.org.
Patient Resources
Amyloidosis Support Group
Join us for:
- Q & A sessions with amyloidosis experts
- Tips to maintain quality of life with amyloidosis Information about clinical trials and therapies
- Group discussions
3rd Utah Amyloidosis Symposium
The objective of the Utah Amyloidosis Symposium is to develop a forum that will catalyze, advocate, and provide education that promotes change, development and improvement for the early diagnosis and management of amyloidosis.
Meet Our Patients
Contact Us
We want to help not just our patients, but the amyloidosis community. Feel free to contact us with any questions or advice:
- Physicians – Contact us for new patient referrals for advice on evaluating or managing all types amyloidosis patients
- Patients – Contact us for information about all types of amyloidosis and treatment recommendations, information about our multidisciplinary program approach or to self-refer to our program for amyloidosis management
- Others – Contact us for any information about amyloidosis or our program
For More Information, Call or Email Us:
Kylee Lewis
New Patient Coordinator
kylee.lewis@hci.utah.edu
801-646-4225
Utah Amyloidosis Nurses
Email: amyloidosis@hci.utah.edu