Amyloidosis Support Group

For patients, families, and friends

JOIN US FOR

  • Q & A sessions with Amyloidosis experts.
  • Tips to maintain quality of life with amyloidosis Information about clinical trials & therapies, and
  • Group discussions

Saturday, May 18, 2019

8:30am– 2:30pm | 1st Floor Auditorium
The Primary Children’s and Families’ Cancer Research Center at Huntsman Cancer Institute

Keynote Speaker

Giovanni Palladini

Dr. Giovanni Palladini, MD

Acting Director, Amyloidosis Research and Treatment Center, Foundation “Istituto di Ricovero e Cura a Carattere Scientifico (IRCCS) Policlinico San Matteo” and Department of Molecular Medicine, University of Pavia, Pavia, Italy.

About

The annual Utah Amyloidosis Support Group in Salt Lake City is provided by Amyloidosis Support Groups, Inc. in conjunction with the Utah Amyloidosis Program. We welcome patients, family members, friends, and anyone else effected by amyloidosis to join us. Group discussions, presentations and Q & A will focus on topics related to amyloidosis as well as caregiver concerns. The majority of topics will focus on AL Amyloidosis and TTR Amyloidosis (hereditary and age-related) but topics surrounding other diagnoses of amyloidosis will be discussed as well. Complementary breakfast and lunch will be provided courtesy of the Utah Amyloidosis Program.

All are welcome to participate but pre-registration is required by one of two options:

Call: Nico Cheek-O’Donnell, Social Worker at 801-587-4695

E-mail: Muriel@AmyloidosisSupport.org

Planned Program

–Content subject to change-

8:30– 9 am Check-in and Light Breakfast
9– 10:30 am Welcome and Keynote Speaker Dr. Giovanni Palladini
10:30– 10:50 am Break
10:50– 12:30 pm

Morning Session

-Caregiver Breakout Session
-Particpant Introduction
-Q&A with Amyloidosis Specialists

12:30– 1:15 pm  Lunch and Treatment Presentations
1:15– 2:30 pm

Afternoon Session

-Patient Discussion and Q&A continued

Location

*New location

The Primary Children’s and Families’ Cancer Research Center at Huntsman Cancer Institute

Parking

Parking is available directly in front of the Primary Children’s and Families’ Cancer Research Center in the outdoor strip parking. Do not park in stalls marked as 24-hour reserved.

This parking lot can be accessed by driving up North Medical Drive past University Hospital and taking the next right in front of the parking terrace. Go straight past the Clinical Neurosciences Center and stay left where the road will curve back into a parking lot directly in front of the Primary Children’s and Families’ Cancer Research Center.

Otherwise, visitors are welcome to park in the patient parking terrace however be aware that the walk will take approximately 5-10 minutes from this location.

RSVP, questions, comments, and concerns can be directed to either Nico Cheek-O’Donnell, Social Worker for the Utah Amyloidosis Program or to Muriel Finkel, President of Amyloidosis Support Groups:

Call: Nico Cheek-O’Donnell, Social Worker at: 801-587-4695

E-mail: Muriel@AmyloidosisSupport.org

Thank you to Muriel Finkel from Amyloidosis Support Groups Inc. for helping us put on this successful event for patients and others affected by amyloidosis on an annual basis. More about Amyloidosis Support Groups, Inc. can be found at their website amyloidosissupport.org.

Contact Us

We want to help not just our patients, but the amyloidosis community. Feel free to contact us with any questions or advice:

  • Physicians  Contact us for new patient referrals for advice on evaluating or managing all types amyloidosis patients
  • Patients  Contact us for information about all types of amyloidosis and treatment recommendations, information about our multidisciplinary program approach or to self-refer to our program for amyloidosis management
  • Others  Contact us for any information about amyloidosis or our program

For More Information, Call or Email Us:

Jared Cowley

Amyloidosis Program Nurse Coordinator
Email: amyloidosis@hci.utah.edu
Phone: 801-587-4659

Christopher Moss

New Patient Coordinator
Email: christopher.moss@hci.utah.edu
Phone: 801-213-5723