happy disabled dad and daughter

 MDA Care Center Logo

The Muscular Dystrophy Clinic is sponsored by the Muscular Dystrophy Association and provides a multidisciplinary clinic serving the needs of adults and children with over 40 types of neuromuscular disorders. These disorders include all forms of muscular dystrophy, spinal muscle atrophy, and hereditary neuropathies like Charcot Marie Tooth disease.

The clinic is an MDA Care Center and recognized as a Center of Excellence for Charcot Marie Tooth disease.

Conditions We Treat

We provide treatment and care for over 40 types of neuromuscular disorders for both children and adults. Conditions we treat include:

For Patients

Preparing For Your Visit

If you have a neuromuscular disorder, many day-to-day activities can be overwhelming. Before your visit with us, we want to make sure you know what to expect. Please read how to prepare for your visit.

Resources

We also know that living with a neuromuscular disorder can be challenging. We've collected a list of resources to help patients, their families, and the community learn to successfully manage neuromuscular disorders.

Outreach Clinic

We hold an outreach Muscular Dystrophy clinic in St. George twice a year in the Spring and Fall. Please contact the number above to find out the specific dates of the outreach clinic and schedule an appointment.

Research

Physicians in our neuromuscular program are deeply involved with research. Learn more.

The Utah Program for Inherited Neuromuscular Disorders (UPIN)

The Utah Program for Inherited Neuromuscular Disorders (UPIN) is a perfect example our physicians’ engagement in research. Learn more about UPIN’s research team, events, and current studies.

Mark B. Bromberg, MD, PhD

Patient Rating:

4.7

4.7 out of 5

Dr Mark Bromberg is a Professor of Neurology at the University of Utah. He received a doctoral degree in Neurophysiology from the University of Vermont and his medical degree and his neurology residency training from the University of Michigan. He also completed a fellowship in clinical neurophysiology and neuromuscular diseases at the University o... Read More

Russell J. Butterfield, MD, PhD

Russell Butterfield, MD, PhD received his PhD in mammalian genetics, and medical degree from the University of Illinois. He completed his residency training in pediatric neurology at the University of Utah in June 2009. He is currently an Assistant Professor in the Departments of Neurology and Pediatrics, after completing a fellowship in neuromus... Read More

Specialties:

Neurology, Pediatric Neurology, Muscular Dystrophy, Neuromuscular Diseases

Locations:

Clinical Neurosciences Center 801-213-3599
Eccles Primary Children’s Outpatient Services Building 801-213-3599
Shriners Hospital for Children
Pediatric Neurology
801-536-3500

Summer Gibson, MD

Patient Rating:

4.8

4.8 out of 5

Dr. Gibson is a Utah native. She attended Rice University where she earned her BA in biology and then received her MD from the University of Texas Health Science Center in San Antonio. At that point she returned to Utah where she completed her residency training in Neurology, in her last year she was nominated a co-chief. During her residency she d... Read More

Nicholas Johnson, MD

Patient Rating:

4.5

4.5 out of 5

Nicholas Johnson, MD, is an Assistant Professor of Neurology, Pediatrics, and Pathology at the University of Utah with a focus in inherited neuromuscular disorders. He received his undergraduate degree in Molecular and Cellular Biology and Psychology at The University of Arizona. He then obtained his medical degree at The University of Arizona. He ... Read More

Tara M. Newcomb, MS

Tara Newcomb is a licensed certified genetic counselor working with the Pediatric Motor Disorders Research Program at the University of Utah. She earned her Bachelors of Science from University of Nebraska-Lincoln in Biochemistry in 2008 and her Masters of Science in Genetic Counseling from the University of Utah in 2010. She began working at the U... Read More

Specialties:

Genetic Counselor

Locations:

A location has not yet been added by this physician.

Deanna L. DiBella, PT

Deanna DiBella is a physical therapist in the Muscular Dystophy and Neurology clinics. She sees both pediatric and adults individuals. Additionally, Deanna is part of the Utah Program for Inherited Neuromuscular Disorders (UPIN). As part of the UPIN team, she is conducts research into the disease progression of neuromuscular diseases and she is an ... Read More

Specialties:

Neurology, Physical Therapy

Locations:

Clinical Neurosciences Center 801-585-7575

Specialties:

Physical Therapy

Locations:

A location has not yet been added by this physician.

John C. Fang, MD

Patient Rating:

4.8

4.8 out of 5

John Fang M.D., is the Division Chief and Professor Medicine of the Division of Gastroenterology at the University of Utah Hospital and Huntsman Cancer Institute. His clinical interests include treatment, diagnosis, and continuing care for gastrointestinal diseases and endoscopy. He specializes in Barrett's Esophagus, Enteral Nutrition, Esophageal... Read More

Specialties:

Gastroenterology, Barrett's Esophagus, Endoscopy, Enteral Nutrition, Eosinophilic Esophagitis, Esophageal Diseases, GI Motility, Gastroesophageal Reflux Disease (GERD), Therapeutic Endoscopy

Locations:

Huntsman Cancer Institute
Endoscopy
801-213-9797
Redwood Health Center
Gastroenterology
801-213-9797
University Hospital
Gastroenterology Endoscopy Center
801-213-9797
University Hospital
Gastroenterology, Clinic 3
801-213-9797

Michael M. Green, DO

Dr. Michael Green is currently an assistant professor (Clinical) of Physical Medicine and Rehabilitation (Dept of Pediatrics with adjunct in PMR), School of Medicine, University of Utah. At the University of Utah adult PMR clinic he manages the rehabilitation needs of adults with childhood onset disabilities. This clinic specializes in the transi... Read More

Specialties:

Cancer Rehabilitation, Pediatric Rehabilitation, Pediatric Spasticity Management, Pediatric Spinal Cord Injury, Pediatric Traumatic Brain Injury, Spasticity Management, Spinal Cord Injury, Stroke, Traumatic Brain Injury

Locations:

Eccles Primary Children’s Outpatient Services Building 801-213-3599
Primary Children's Hospital
Physical Medicine & Rehabilitation
School of Medicine
Physical Medicine & Rehabilitation
801-581-2267

Estelle S. Harris, MD

Estelle S. Harris, MD is an Associate Professor of Medicine at the University of Utah Health Science Center. As a Pulmonary and Critical Care physician, her clinical interests include general pulmonary consultation, acute lung injury, non-invasive ventilation, neuromuscular abnormalities and diaphragm muscle dysfunction. Dr. Harris received her M... Read More

Specialties:

Critical Care, Pulmonary, General Pulmonary

Locations:

University Hospital
Pulmonary, Clinic 3
801-581-7806

Specialties:

Orthopaedic Surgery, Orthopaedic Spine Surgery, Pediatric Orthopaedic Surgery

Locations:

PCH Outpatient Services at Riverton
Orthopedics
801-285-1440
Primary Children's Hospital 801-662-5600

Ashwin K. Lal, MD

Ashwin Lal, M.D. is an Assistant Professor of Pediatric Cardiology at Primary Children’s Hospital. His clinical interests include cardiomyopathy and heart failure with an emphasis on cardiac mechanical support and heart transplantation. He also has a general cardiology clinic where he sees patient with all forms of heart disease.... Read More

Mark A. Mahan, MD

Patient Rating:

4.7

4.7 out of 5

Dr. Mahan specializes in complex peripheral nerve surgery, spine surgery and neurologic reconstruction for diseases such as spasticity, spinal cord injury, nerve injury and stroke. Dr. Mark Mahan is a neurosurgeon who specializes in peripheral nerve and spinal disorders. He completed his residency at the internationally recognized Barrow Neurologi... Read More

Brian M. McGinley, MD

Dr. McGinley received his medical degree from the Ohio State University School of Medicine, completed his Pediatric residency and Sleep Medicine fellowship at Tulane University, and his Pediatric Pulmonary Fellowship at Johns Hopkins University. He was on the faculty of Johns Hopkins University for 8 years. Dr. McGinley is board-certified in Pediat... Read More

Eric R. Scaife, MD

Dr. Eric R. Scaife clinical interests include all aspects of Pediatric Surgery including common issues as inguinal hernia, umbilical hernia, hydrocele, undescended testicle. His specialty referrals include gastroesophageal reflux disease, chest wall deformities (pectus excavatum and pectus carinatum), Inflammatory bowel disease (Crohns disease and... Read More

Specialties:

Pediatric Surgery, Pediatric Trauma Surgery

Locations:

PCH Outpatient Services at Riverton 801-662-2950
Primary Children's Hospital 801-662-2950
Rock Canyon Pediatric Specialists
Pediatric Surgery
801-357-1700

Alan K. Stotts, MD

Patient Rating:

4.7

4.7 out of 5

Dr. Alan Stotts, Associate Professor (clinical) specializes in pediatric orthopaedic surgery, with fellowship training in the full spectrum of childhood orthopaedic conditions. Dr. Stotts’ clinical interests include the treatment of children with congenital and developmental orthopaedic conditions, neuromuscular disease, hip disorders, deformity of... Read More

Specialties:

Orthopaedic Surgery, Pediatric Orthopaedic Surgery

Locations:

PCH Outpatient Services at Riverton 801-285-1440
Primary Children's Hospital
Pediatric Orthopaedics
801-662-5600

Kevin J. Whitehead, MD

Patient Rating:

4.8

4.8 out of 5

Kevin Whitehead, MD is an Associate Professor of Cardiovascular Medicine at the University of Utah, and Adjunct Associate Professor of Pediatric Cardiology at Primary Children's Medical Center. He also is an Attending Physician at the George E. Wahlen Veterans Affairs Medical Center. He is co-director of the Utah Adult Congenital Heart Disease cent... Read More

Specialties:

Cardiology, Hereditary Hemorrhagic Telangiectasia, Adult Congenital Heart Disease, Echocardiography

Locations:

Saint Alphonsus Regional Medical Center 208-367-2121
University Hospital
Utah Adult Congential Heart Clinic
801-585-7676
University Hospital
HHT Center
801-581-8188
University Hospital
Cardiovascular Center
801-585-7676
William B. Ririe Hospital & Rural Health Clinic 775-289-3612

Clinical Care Manager

Caren Trujillo, RN, MSN/Ed

Caren Trujillo, RN, MSN/Ed

Caren coordinates clinical research studies as part of the Utah Program for Inherited Neuromuscular Disorders. She also manages and coordinates the Muscular Dystrophy Clinic services at the Clinical Neurosciences Center. Caren Trujillo earned her Bachelor’s of Science in nursing from the University of Barcelona, Spain, and holds a Master’s of Science in nursing degree with a focus on nursing and health care education.

Email: caren.trujillo@hsc.utah.edu

Locations

Clinical Neurosciences Center (801) 585-6065

Social Worker

Eva Tukuafu

Eva Tukuafu, MSW, LCSW

Eva is a clinical social worker in the Movement Disorder and Neuromuscular Divisions. She joined the Department of Neurology in April 2015 in a newly created position designed to integrate behavioral health into clinic to help meet patients’ needs. She provides clinical care in the Muscular Dystrophy, ALS (Lou Gehrig’s), Huntington’s Disease and Tourette Syndrome clinics. She facilitates several of the department’s patient support groups. She specializes in teaching Grief & Loss therapies, chronic health coping skills, Cognitive Behavioral therapies and psychosocial functional assessments. She is certified in Comprehensive Behavioral Intervention for Tics (CBIT) through the Tourette Association of America. She is actively involved in Huntington’s Disease and Tourette Syndrome clinical research. She has previous experience working in geriatrics and psychiatry inpatient, and providing behavioral therapy for children with Autism.

Dietitian

April Young, RD, CD

April has been working at the university since 2015. She has been a dietitian for 13 years. She received her Bachelor in Nutrition from the University of Akron and did her internship at St Louis VA Medical Center. She is currently finishing up her master's degree.

Respiratory Therapist

Aubrey Perman, RRT

Aubrey is a respiratory therapist for the ALS, Neuromuscular clinic and the University of Utah Hospital. Aubrey joined the respiratory team in 2005 and specializes in acute and chronic respiratory needs, in both the outpatient and inpatient setting. She is an expert in mechanical ventilation management, airway clearance and lung volume expansion therapies. She has previous experience as a phlebotomist and dialysis technician, and enjoys caring for her patients' to increase their quality of life.

Email: aubrey.perman@hsc.utah.edu

Clinical Nurse Coordinators

Keely Kirby, RN, BSN

Keely is a registered nurse for the Neuromuscular Division at the Clinical Neurosciences Center Neurology Clinic. Keely received her Bachelors of Science in Nursing from Westminster College. She provides clinical care for the Amyotrophic Lateral Sclerosis (ALS) and the Muscular Dystrophy (MDA) clinics. Keely provides support for the patients of the following physicians; Dr. Russell Butterfield, Dr. Mark Bromberg, and Dr. Rob Singleton. Keely has worked in the neurological field for many years, both inpatient and outpatient. She has a great passion for the relationships she is able to build with her patient’s in the Neuromuscular Clinic.

Email: keely.kirby@hsc.utah.edu

Locations

Clinical Neurosciences Center (801) 585-6052

Melonie Bird, RN

Melonie is a registered nurse for the Neuromuscular Division at the Clinical Neurosciences Center Neurology Clinic. Melonie has worked for University of Utah Hospitals and Clinics since May of 2003 as a registered nurse. She worked in both the Neuro Critical Care Unit and Neuro Acute Care Unit. She provides clinical care coordination for the Amyotrophic Lateral Sclerosis (ALS) and the Muscular Dystrophy (MDA) clinics. Melonie provides support for the patients of the following physicians; Dr. A. Gordon Smith, Dr. Summer Gibson, Dr. Nicholas Johnson, and Dr. Ligia Onofrei.

Email: melonie.bird@hsc.utah.edu

Locations

Clinical Neurosciences Center (801) 587-9824

University Campus/Research Park

Clinical Neurosciences Center 175 N. Medical Drive
Salt Lake City, UT 84132
Map
(801) 585-7575