Management & Personalized Treatment Plans
- primary care providers,
- interventional specialists,
- electrical specialists,
- cardiothoracic surgeons, OB/GYN providers,
- high risk maternal-fetal medicine specialists,
- heart failure and transplant cardiologists,
- cardiac genetics,
- social workers,
- inpatient providers,
- palliative care teams, and
- other providers through the pediatric and adult hospitals.
Our multidisciplinary approach ensures that patients receive the care they need, with the provider they need, and in the appropriate location for their needs. We have the ability to see patients throughout several hospital systems and outreach locations.
What Is Adult Congenital Heart Disease?
Congenital diseases or birth defects mean that a person is born with that disease. Congenital diseases or defects develop when a fetus is still developing; they don’t develop later in life. Congenital heart disease happens when someone is born with defects in parts of their heart or in the blood vessels around their heart. Even though a baby is born with congenital heart disease, this disease may not be diagnosed until later in life.
Adult congenital heart disease is common. About one in every 150 adults has congenital heart disease.
Adult Congenital Heart Disease & Pulmonary Hypertension
Some patients with congenital heart disease will develop pulmonary hypertension (high blood pressure in the lungs) that can lead to other health problems and can affect how your heart works. Our adult congenital heart disease providers also work closely with University of Utah Health's Pulmonary Hypertension Program to provide coordinated care for these patients.
Adult Congenital Heart Disease & Heart Transplant
Conditions We Treat
We treat the following conditions:
- Obstructive defects
- Aortic valve stenosis (AS)
- Pulmonary valve stenosis (PS)
- Bicuspid aortic valve
- Tricuspid valve stenosis/dysplasia
- Mitral valve stenosis
- Interrupted aortic arch
- Subaortic stenosis
- Coarctation of the aorta (coarct)
- Septal defects
- Cyanotic defects
- Total anomalous pulmonary venous return (TAPVR)
- Partial anomalous pulmonary venous return (PAPVR)
- Truncus arteriosus
- Patent ductus arteriosus
- Tetralogy of fallot
- Ebstein’s anomaly
- D-transposition of the great arteries (D-TGA)
- Congenitally corrected transposition of the great arteries (L-TGA)
- Aortopathy/Connective tissue disorders
- Marfan syndrome
- Loeys-Dietz syndrome
- Familial aortopathies
- Ehlers-Danlos Syndrome (vascular type, classic type, hypermobility, if known aortic dilation or mitral valve prolapse)
We also treat single ventricle conditions including the following:
- Tricuspid atresia
- Double-inlet left ventricle
- Heterotaxy syndromes
- Hypoplastic left heart syndrome
- Pulmonary atresia
- Unbalanced AV septal defects
- s/p Fontan procedure
Find a Heart Specialist
Heart Disease & Pregnancy
We provide comprehensive obstetric and gynecologic care for women with congenital heart conditions. We encourage all women with congenital heart conditions to establish care with a primary OB/GYN and meet with a maternal-fetal medicine provider (high risk OB/GYN) before they consider getting pregnant.
- specific heart issue,
- functional status,
- genetic counseling,
- recurrence risk of congenital heart conditions,
- optimization of medical status before, during and after pregnancy, and
- other factors regarding risks of pregnancy to the patient or fetus.
- optimize your care,
- establish plans for timing, location, and mode of delivery, and
- optimize post-delivery care.
Adults with congenital heart conditions are often not only coping with their cardiac diagnosis, but sometimes struggle with their medical diagnosis both psychologically and socially. When a need for mental health services are found, or are expressed by our patient, our social work team will be consulted to provide an initial psychosocial and mental health assessment. The social worker will educate and assist in facilitating an appropriate mental health referral for patients based on need, location, and insurance coverage.
ACHD Sub-Specialty Fellowship Training
Due to the complexity of adult patients with congenital heart disease, it is recommended that most ACHD patients follow with providers who have specific training and knowledge to care for the complex conditions. “Adult Congenital Heart Disease” fellowship and subsequent board certification ensures that providers caring for this population have the necessary training and experience. Our program offers a 2-year fellowship position for providers who have already trained in pediatric or adult cardiology to gain this extra knowledge and experience caring for patients with congenital heart conditions.