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Comprehensive, Expert Retinoblastoma Care in the Mountain West

Each year about 300 children in the United States are diagnosed with retinoblastoma, an eye cancer that makes up about 1% of childhood cancers. This cancer typically occurs in young children, often around age one to two. 

A comprehensive care team, like the one based at the John A. Moran Eye Center, is essential to help children diagnosed with retinoblastoma achieve the best possible outcomes. With advanced treatments, most survive the cancer and go on to lead healthy lives with vision comparable to their peers.

 

Why Choose Us for Retinoblastoma Treatment

The Moran Eye Center, working in collaboration with Huntsman Cancer Institute and Intermountain Primary Children’s Hospital, uses cutting edge diagnostics, treatments, and therapies to offer world-class, compassionate care for our retinoblastoma patients. 

The University of Utah is one of only a few centers nationwide that offers a dedicated, comprehensive service for children affected by retinoblastoma. This service allows our patients in Utah and the surrounding region to receive advanced, coordinated care close to home.

Huntsman Cancer Institute is the region’s only National Cancer Institute-designated Comprehensive Cancer Center, with unique resources to support eye cancer care.  

Primary Children’s Hospital (PCH) offers a personalized approach to your child’s care, including support to families and children throughout their treatment, with care coordinators, nurses, child life specialists, social workers, and psychology and nutrition services. PCH also has a highly skilled team of pediatric anesthesiologists to provide safe and personalized anesthesia care throughout your child's treatment.

Retinoblastoma treatment requires a care team with expertise in many specialties, which might include providers in medical oncology, interventional radiology, radiation oncology, genetic counseling, and clinical social work. Our teams of board-certified and fellowship-trained doctors meet and collaborate frequently to optimize a patient’s individual care. 

We offer state-of-the-art diagnostic tools and treatments:

  • Intra-arterial chemotherapy (or ophthalmic artery chemosurgery)
  • Intraocular chemotherapy (intravitreal chemotherapy)
  • Personalized systemic chemotherapy treatment
  • Laser therapy
  • Cryotherapy
  • Targeted radiation, including pediatric brachytherapy
  • Enucleation
  • Certified genetic counselors, with a full array of genetic testing
  • Advanced diagnostics, including:
    • Hand-held optical coherence tomography (OCT)
    • High-resolution ultrasonography
    • Portable electroretinography (ERG)
  • Custom eye prosthesis options

Our team also is committed to advancing the care of retinoblastoma through innovative research and access to clinical trials to learn more about tumor biology and new treatments.

What is Retinoblastoma?

Retinoblastoma is often spotted by physicians or relatives who spot something unusual about the child's eyes, like a white spot on the pupil.

Retinoblastoma graphic

Retinoblastoma Symptoms

  • Pupil looks cloudy or has an abnormal white reflection
  • Eyes appear to point in different directions 
  • Pain or redness in the eye
  • Eyeball looks larger than normal 

Retinoblastoma Treatment

Meet Our Specialists

    • Eric Hansen, MD: Chief, Ocular Oncology; Co-director of Utah Retinoblastoma Program 

    • Caroline Craven, MD: Attending Physician 

    • Tiffany McKenna: Oncology Coordinator 

          Our Care Team

          John A. Moran Eye Center

          • Oculoplastics
          • Pediatric Ophthalmology
          • Ocular Pathology
          Learn More About the Moran Eye Center

          Huntsman Cancer Institute

          • Radiation Oncology
          • Medical Oncology
          • Melanoma and Skin Cancer Program
          • Social Work
          • Cytopathology
          Learn More About Huntsman Cancer Institute

          Intermountain Primary Children’s Hospital

          • Pediatric Hematology-Oncology
          • Interventional Radiology
          • Neurosurgery
          Learn More About Primary Children's Hospital

          Hear From Our Specialists

          From Daisy to Mina—New Book Helps Families Dealing with a Rare Eye Cancer

          Daisy Callister's experience with retinoblastoma inspired “Mina and Her New Eye,” a new children's book created by the Patient Support Program at the Moran Eye Center.

          Bennett in Clinic

          Baby Monitor Image Leads to Eye Cancer Diagnosis

          Benny’s retinoblastoma was caught early enough for doctors at Intermountain Primary Children’s Hospital and the Moran Eye Center to use an innovative, minimally invasive treatment. 

          Appointments and Referrals

          For patients: Call 801-213-1155 to make an appointment.

          For referring physicians: Visit the link below or call 801-213-1155.

          Physician Referral Services