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Neilsen Rehabilitation Hospital Resource Library

Call  801-646-8000 or

SERVICES & SPECIALTIES

Health & Wellness Support

CRISIS 

Call 988 - Suicide & Crisis Lifeline https://988lifeline.org/  - Free, confidential mental health support

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Al-Anon https://utah-alanon.org/ Support for families and friends of alcoholics

Alcoholics Anonymous https://www.aa.org/ Provides resources to find help and support for alcohol abuse around the country.

American College of Lifestyle Medicine  https://lifestylemedicine.org/ The American College of Lifestyle Medicine is a society of medical professionals united to reverse chronic disease.

American Heart Association (AHA) https://www.heart.org/ A wonderful resource for cardiac and stroke individuals and their families/caregivers. Their website has research, healthy recipes and lifestyle recommendations for heart attack and stroke prevention and care.

American Heart Association (AHA) Stroke Walk http://www2.heart.org/site/TR?fr_id=4219&pg=entry 

Michelle Arredondo 801-702-4426
Sugar House Park, 1330 E 2100 S, Salt Lake City, UT 84106
This is a walk centered around supporting and celebrating survivors. Proceeds go to fighting heart disease and stroke. Health booths will be set up to provide information, activities, and giveaways

Amputee Coalition https://www.amputee-coalition.org/ To support, educate, and advocate for people impacted by limb loss and limb difference.

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Balance and Mobility Clinic https://healthcare.utah.edu/locations/balance-mobility/  Focus on regaining balance/strength after a disability or injury. Also provide pelvic floor interventions. 801-587-9161 University of Utah, Health Sciences Education Building, 520 Wakara Way, Salt Lake City, UT, 84108

BE Nutrition https://www.benutritionco.com/ 704-380-9924 - Focus towards women's healthy eating; available virtually

Bobby the Bladder: Interactive animation for bladder management education https://gamejolt.com/games/bobby-the-bladder/651307

Asta Cath Female Catheter Guide  https://commedpro.com/product/asta-cath-female-catheter-guide/

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CDC Heart Disease and Stroke Prevention https://www.cdc.gov/dhdsp/index.htm Resource for stroke related health information and prevention.

Center for Change https://centerforchange.com/ 888-224-8250 - 1790 North State Street Orem, UT - Clinic for Eating Disorders

Center for Healing Therapies https://www.healingtherapies.net/ - 699 E. South Temple - 801-725-9594 - Mental health services for individuals, couples and families (includes LGBTQ+ community).

Center for Human Potential https://c4hp.com/ 801-483-2447 - 265 E. 100 S - Mental health services for personal use or businesses.

City Center Psychology https://www.citycenterpsych.com/ 385.831.0200 - Mental health services in downtown Salt Lake City area.

Compass Counseling and Consulting https://www.cccslc.com/ 801-639-9544 - Mental health services offered both in person and nationally. Also provide free webinar content on mental related topics.

Comprensive Psychological Services https://wecanhelpout.com Mental health services with various locations throughout Utah.

Craig H. Neilsen Foundation https://chnfoundation.org/ The foundation's funding is dedicated to supporting both programs and scientific research to improve the quality of life for those living with spinal cord injury.

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Empower Spinal Cord Injury Camp and Program https://www.empowersci.org/ Camp for individuals with SCI to gain skills and continue reaching rehab goals. Must apply to participate, see website for cost/details.

Equinox Counseling Services https://www.equinoxcounselingservices.com/ 801-450-2798 - 923 East Executive Drive Murray, UT - Mental health services for individuals, couples and families.

Find A Therapist https://www.psychologytoday.com/us/therapists/ A search engine to help find a mental health therapist in your area.

Full Circle Yoga and Therapy www.fullcircleut.com  385-528-2950 - 1719 S. Main Street Salt Lake City, UT 84115 - Provides free yoga to patients with stroke or brain injury.

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Guided Eating https://guidedeating.com/ 801-691-8090 - 3325 North University Avenue Provo, UT

Healing Pathways Therapy Center https://www.healingpathwaystherapy.com

info@pathwaysutah.com
435-248-2089

Highland Springs Clinc https://highlandspringsclinic.org/ 800-403-0295

Behavioral Health in Utah, Idaho

Home and Community Based Services-Utah https://medicaid.utah.gov/ltc-2/ Descriptions of Medicaid waivers available to keep patients in their homes

Huntsman Mental Health Institute https://healthcare.utah.edu/hmhi 801-583-2500 - Resources related to mental health and the various programs available through HMHI

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Jim Collins Foundation https://jimcollinsfoundation.org/apply/ Apply for grants to assisit with sexual reassignment surgery costs

L.G. Skaggs Wellness Center https://healthcare.utah.edu/locations/skaggs/ 801-213-8720 - University of Utah, 530 Wakara Way, Salt Lake City, UT 84108 - Provides customized health and wellness programming for individuals in the community, including fitness testing/prescription, massage, nutrition consultation, supervised gym membership, wellness coaching, and a variety of classes/workshops.

LGBTQ+-Affirmative Therapist Guild of Utah http://www.lgbtqtherapists.com/index.html Find therapists for LGBTQAI+ people

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Neuro Pro Bono Clinic:

Julia Bakun at julia.bakun@utah.edu or Lauren Sotelo at lauren.sotelo@utah.edu - University of Utah, Health Sciences Education Building, 520 Wakara Way, Salt Lake City, UT, 84108 - Provide quality physical therapy services to underserved and under-insured individuals in the greater Salt Lake area.

Out2Enroll https://out2enroll.org/ Out2Enroll is a national initiative launched in September 2013 to connect our communities—LGBT people and our families, friends, and allies—with the new health insurance coverage options available under the Affordable Care Act.

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Paralysis Resource Guide https://www.christopherreeve.org/todays-care/living-with-paralysis/free-resources-and-downloads/paralysis-resource-guide/ Created by the Christopher and Dana Reeves Foundation

Phoenix Rebellion Therapy https://phoenixrebelliontherapy.com/ 385-231-8387 Directed toward military, police forces or significant trauma.

Point of Pride https://www.pointofpride.org/annual-transgender-surgery-fund Point of Pride’s Annual Transgender Surgery Fund is a scholarship-like program that provides direct financial assistance to trans folks who cannot afford their gender-affirming surgery.

Positive Change Nutrition https://positivechangenutrition.com/ 435-754-7120 - 1638 North 200 West Logan, UT

Positive Nutrition https://www.positive-nutrition.com/ 801-948-0898 - 2936 South Highland Drive - Developing healthy eating habits

Potenza Psychotherapy https://www.drjessiesmith.com/ 159 W Broadway Suite - 801-200-3222 - Psychotherapy directed towards the trans community

POW Therapy:  Place of Optimal Wellness https://www.powtherapy.com/ 435-731-9083 - specializes in sex therapy, EMDR therapy and holistic health.

man in wheelchair outside

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Red Willow Counseling and Recovery https://www.redwillowcounseling.com 385-313-0055 - 1425 South 700 East 

Rehab Without Walls NeuroSolutions https://www.rehabwithoutwalls.com/

4548 South Atherton Drive
Suite 260
Taylorsville, Utah 84123
(801) 264-0213

Home and Community Based Rehabilitation, CARF Accredited by Brain Injury and Spinal Cord Injury

Riverwoods Behavioral Health https://www.rbh.care/ 801-787-9855

Rock Steady Boxing https://rocksteadyboxing.org/find-a-class/#go_here Adaptive non-contact boxing skills for individuals with Parkinson's Disease

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Sage Family Counseling https://sagefamilycounseling.com/ 801-432-0883 - locations in Draper and Heber

Salt City Psychology saltcitypsychology@gmail.com 801-758-7370

Salt Lake County Community Centers https://slco.org/parks-recreation/facilities-and-golf/Recreation-Centers/ 385-468-1800 - Recreation centers offer individual and group fitness opportunities including learn-to classes, drop-in fitness, leagues, teams weight rooms, sports and child care.  Locations throughout the Wasatch Front

Salt Lake County Senior Centers Senior Centers - Aging & Adult Services | Salt Lake County 385-468-3200 - Aging and adult services offers a comprehensive range of programs to enlighten, education and enrich the lives of adults age 60 and over.

Spinal Cord Injury Research Evidence (SCIRE) Professional home - SCIRE Professional (scireproject.com) SCI evidence based research resource

Seniors Blue Book https://seniorsbluebook.com/local/utah Resources for Aging Well

Sorensen Legacy Foundation Center for Clinical Excellence https://cehs.usu.edu/scce/services/clinical-rehabilitation-counseling 435-797-3403 - Based through Utah State University

Sugarhouse Outpatient Clinic Sugar House Therapy Services | University of Utah Health 801-581-2211 - 1280 E Stringham Ave, Salt Lake City, UT 84106 - There are a wide array of services provided in this clinic including therapy services, outpatient services, wellness program, group therapy and return to driving program.

Sundance Behavioral Resources https://www.sundancebehavioral.com/ 801-264-9522

T-U

Tanner Dancers with Disabilities Camp https://tannerdance.utah.edu/dwd-camps/

U of U
201 Presidents Circle
SLC, UT 84112
801-581-7200 Camps or Saturday Classes

The Counseling Center https://counselingcenterut.com (801) 934-3373

TRAILS https://www.utrails.us/ 801-581-2526; 801-581-2885 - Adaptive Recreation, Spinal Cord Injury Education & Community

TransMission-The Loft https://www.loftgaycenter.org/transmission The TransMission program provides financial assistance of up to $500 for expenses related to social, legal, medical, or surgical transition. Applicants must be over 18 years of age and reside within the United States. Priority will be given to residents of New York’s Hudson Valley. All are welcome to apply.

Unite 2 Fight Paralysis https://u2fp.org/ Unite 2 Fight Paralysis exists to unite and empower the international spinal cord injury community to cure paralysis through advocacy, education, and support for research.

University of Utah Rehabilition Psychology https://medicine.utah.edu/pmr/rehab-psych/ 801-581-6228 - 
50 North Medical Drive Salt Lake City, UT 84132 - This is a service provided by the University of Utah’s school of medicine. This program provides psychological support for persons attempting to cope with conditions such as stroke.

University of Utah Stroke Treatment https://healthcare.utah.edu/neurosciences/neurology/stroke/#stroketreatment

801-587-9935 or 801-585-7575
Clinical Neurosciences Services, 175 North Medical Drive East, Salt Lake City, UT 84132 - This website provides a variety of info regarding stroke treatment/services at the University of Utah, including: finding a specialist, stroke care 24/7, causes of stroke, signs of strokes, stroke treatment, clinical trials, and the health feed which includes health info regarding stroke (e.g., preventing caregiver burnout).

Utah Center for Evidence Based Treatment https://www.ucebt.com/ 801-419-0139

Utah Community Action https://utahca.org/ Utah Community Action is one of the largest nonprofit agencies dedicated to fighting poverty and its root causes in Utah

Utah Department of Health & Human Services https://dhhs.utah.gov/

Multi-Agency State Office Building
195 North 1950 West
Salt Lake City, Utah
84116
(833) 353-3447 Medicare, Medicaid and Physical Disability Waivers

Utah Independent Living Center https://uilc.org/en/ 801-466-5565 - 3445 S Main Street, Salt Lake City, UT 84115 - Provides services, activities, and advocacy to enhance independent living skills of those with disabilities.

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Wasatch Psychological Services https://wasatchpsych.com (801) 590-0525

Weber County Aging Human Services https://www.weberhsaging.net/

Wyoming Home Services Program https://health.wyo.gov/aging/communityliving/community-living-section-programs/wyhs/ 

Finance & Legal

Finance

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ABLE National Resource Center https://www.ablenrc.org/ Their mission is to educate, promote and support achieving a better life experience (ABLE) act for individuals with disabilities and their families.

Able Utah Savings Plan https://ableut.com/ A savings account for individuals with disabilities that is tax-free and won't impact other needs-based benefits, each state has a version of this program.

Advanced Care Directive https://ucoa.utah.edu/coreissues/directives/

Americans with Disabilities Act https://www.ada.gov/ Legal rights resource

Craig H. Neilsen Foundation https://chnfoundation.org/ The foundation's funding is dedicated to supporting both programs and scientific research to improve the quality of life for those living with spinal cord injury.

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Disability Law Center: Low Cost Legal Services https://disabilitylawcenter.org/ 800-662-9080
960 South Main Street, Salt Lake City, UT 84101  - Provides services to individuals regarding discrimination due to disability (e.g., assistive technology, housing, community living).

Division of Services for People with Disabilities (DSPD) https://dspd.utah.gov/services/ Provide a variety of services to individuals with disabilities depending on qualification.

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Go Medical https://gomedicalonline.com/?srsltid=AfmBOopwrIRshafIOAe4GRSmdhWcJMlC4_JcHegZCpiREU12hzZ-jkyY An online medical supply wholesaler who offers urological, ostomy, incontinence, wound and other medical supplies. 

Good Rx https://www.goodrx.com/ A website to search for prescription coupons

Help Hope Live https://helphopelive.org/ Medical fundraising resource

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Social Security www.ssa.gov Information regarding retirement, supplemental security income (SSI), Medicare, disability benefits.

Social Security Office Salt Lake https://www.ssofficelocation.com/apply-for-social-security 866-851-5275  or 801-524-5047
175 E 400 S #500, Salt Lake City, UT 84111 - Information regarding retirement, supplemental security income (SSI), Medicare, disability benefits.

The Limb Preservation Foundation https://limbpreservation.org/financial-support/ Provides financial support for living expenses while patients are undgoigng treatment for limb threatening conditions. 

The Utah Food Bank https://utahfoodbank.org Provides food to those in need.

Utah Community Action https://utahca.org/ Utah Community Action is one of the largest nonprofit agencies dedicated to fighting poverty and its root causes in Utah

Medical Information & Care

Medical Information

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American Brain Tumor Association https://www.abta.org Brain tumor education on types, treatments and caregiving

American College of Lifestyle Medicine  https://lifestylemedicine.org/ The American College of Lifestyle Medicine is a society of medical professionals united to reverse chronic disease.

American Heart Association (AHA) https://www.heart.org/ A wonderful resource for cardiac and stroke individuals and their families/caregivers. Their website has research, healthy recipes and lifestyle recommendations for heart attack and stroke prevention and care.

Amputee Coalition https://www.amputee-coalition.org/ To support, educate, and advocate for people impacted by limb loss and limb difference.

Aphasia Association Homepage - The National Aphasia Association The National Aphasia Association

Canadian Spinal Cord Injury Practice Guidelines for Adults Can-Scip (kite-uhn.com) Canadian Spinal Cord Injury Practice (CAN-SCIP) Guidelines for adults last updated in 2021

Care Cure Community https://www.carecure.net/ Forums and articles on SCI related topics and research

CDC Heart Disease and Stroke Prevention https://www.cdc.gov/dhdsp/index.htm Resource for stroke related health information and prevention.

Clinical Trials https://www.clinicaltrials.gov/ View and register for ongoing clinical trials

Craig H. Neilsen Foundation https://chnfoundation.org/ The foundation's funding is dedicated to supporting both programs and scientific research to improve the quality of life for those living with spinal cord injury.

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Division of Services for People with Disabilities (DSPD) https://dspd.utah.gov/services/ Provide a variety of services to individuals with disabilities depending on qualification.

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Facing Disability https://facingdisability.com/ Watch videos and/or connect with others living with SCI, their families and health care professionals

Go Medical https://gomedicalonline.com/?srsltid=AfmBOopwrIRshafIOAe4GRSmdhWcJMlC4_JcHegZCpiREU12hzZ-jkyY An online medical supply wholesaler who offers urological, ostomy, incontinence, wound and other medical supplies. 

Good Rx https://www.goodrx.com/ A website to search for prescription coupons

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Maliheh Free Clinic https://malihehfreeclinic.org/ 941 E. 3300 S, Millcreek, UT 84106 - Provide health care services to underserved and under-insured individuals in the greater Salt Lake area.

Medicare https://www.medicare.gov/ 

Medicare: Care Compare https://www.medicare.gov/care-compare/ Allows you to compare nursing homes, doctors, hospitals who accept Medicare patients

Midvale Community Building Community (CBC) Clinic https://www.midvalecommunityclinic.com/ 385-887-9002 - Center St, Midvale, UT 84047 - Provide health care services to underserved and under-insured individuals in the greater Salt Lake area.

Model Systems Knowledge Translation Center https://msktc.org/ Research Based Rehabilitation Resources

Model Systems Burn Factsheet https://msktc.org/burn/factsheets  Burn Injury Resources

MyChart https://mychart.med.utah.edu/mychart/Authentication/Login 801-213-5555 Call the help line to trouble shoot MyChart related issues. MyChart App also available.

Myomo https://myomo.com/ A wearable device to promote arm function for qualifying individuals.

National Brain Tumor Society https://braintumor.org/  

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Paralysis Resource Guide https://www.christopherreeve.org/todays-care/living-with-paralysis/free-resources-and-downloads/paralysis-resource-guide/ Created by the Christopher and Dana Reeves Foundation

Rebirth Health Center https://rebirthhealthcenter.com/ 801-272-3909 - Rebirth Health Center is a progressive medical practice located in Salt Lake City, Utah, with a focus on Gynecology, Gender affirming hormone therapy, Menopausal syndrome, Sexual health, Mental health, and later in 2023 Ketamine therapy

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SCI Trial Finder Search Tool

Spinal Cord Injury Trials - Home (scitrials.org) Search tool to find active research studies to participate in related to Spinal Cord Injury

Spinal Cord Injury Research Evidence (SCIRE) Professional home - SCIRE Professional (scireproject.com) SCI evidence based research resource

Seniors Blue Book https://seniorsbluebook.com/local/utah Resources for Aging Well

Spinalpedia www.spinalpedia.com  The Brain That Changes Itself

Trans Health Project https://transhealthproject.org/resources/academic-gender-centers/ Provides listing of academic gender medical centers 

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Understanding Spinal Cord Injury: A Course for Personal Care Assistants https://kesslerfoundation.org/understanding-spinal-cord-injury-course-personal-care-assistants  A free course for helping train personal care assistants on SCI care developed by Kessler Foundation.

United Spinal Association www.unitedspinal.org 800-404-2898 National Spinal Cord Injury Resource

University of Utah Transgender Program https://healthcare.utah.edu/transgender-health/   801-213-2195

Uspring Research https://uspring.weebly.com/

Alexandra Terrill, PhD
801-581-5951
alex.terrill@hsc.utah.edu

Provides an overview of research projects going on within the Department of Occupational and Recreational Therapies

Utah Community Action https://utahca.org/ Utah Community Action is one of the largest nonprofit agencies dedicated to fighting poverty and its root causes in Utah

Utah Department of Health & Human Services https://dhhs.utah.gov/

Multi-Agency State Office Building
195 North 1950 West
Salt Lake City, Utah
84116
(833) 353-3447 Medicare, Medicaid, Physical Disability Waivers, 

VHA LGBTQ+ Health Program https://www.patientcare.va.gov/lgbt/

Yes, You Can Manual!  https://pva.org/wp-content/uploads/2021/09/yes-you-can_digital.pdf Guide for people living with SCI and their caregivers from the Paralyzed Veterans of America.

CAREGIVING & SUPPORT

Caregiving

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American Brain Tumor Association https://www.abta.org Brain tumor education on types, tratements and caregiving

American Heart Association (AHA) https://www.heart.org/ A wonderful resource for cardiac and stroke individuals and their families/caregivers. Their website has research, healthy recipes and lifestyle recommendations for heart attack and stroke prevention and care.

Amputee Coalition https://www.amputee-coalition.org/ To support, educate, and advocate for people impacted by limb loss and limb difference.

Aphasia Talking Practice Group

Emily Redd
emily.redd@imail.org
TOSH 5770 South 250 East Murray, UT

Support group for practicing communication every Tuesday from 12-1

BYU Stroke/BI Support Group

https://tbigroup.weebly.com/ 

801-422-0283
The BYU Speech and Language Clinic Room 177 1190 North 900 East Provo, UT 84604
byutbigroup@gmail.com

Support group through Brigham Young University.   Occurs first Thursday of every month from 7:00-8:00 PM. 

Care Cure Community https://www.carecure.net/ Forums and articles on SCI related topics and research

Caregiver Action Network http://caregiveraction.org/about Family caregiver resources for patients dealing with chronic injury

Cognitive Skills Group

Emily Redd
emily.redd@imail.org
TOSH 5770 South 250 East Murray, UT

Support group for practicing and learning cognitive skills for those with brain injury.

Compass Counseling and Consulting https://www.cccslc.com/ 801-639-9544 - Mental health services offered both in person and nationally. Also provide free webinar content on mental related topics.

Craig H. Neilsen Foundation https://chnfoundation.org/ The foundation's funding is dedicated to supporting both programs and scientific research to improve the quality of life for those living with spinal cord injury.

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Daybreak Senior Services https://www.daybreakseniorservices.com/

1351 Valley Drive Ogden, UT
801-823-0160 

Adult Daycare Services

Division of Services for People with Disabilities (DSPD) https://dspd.utah.gov/services/ Provide a variety of services to individuals with disabilities depending on qualification.

Empower Spinal Cord Injury Camp and Program https://www.empowersci.org/ Camp for individuals with SCI to gain skills and continue reaching rehab goals. Must apply to participate, see website for cost/details.

Encircle https://encircletogether.org/ Support for LGBTQAI+ for youth and young adults

Facing Disability https://facingdisability.com/ Watch videos and/or connect with others living with SCI, their families and health care professionals

Family Caregiver Alliance http://www.caregiver.org Mission is to improve the quality of life for family caregivers and the people who recieve their care. Find quality information, support and resources for caregiving.

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Genderbands https://www.genderbands.org/ OUR MISSION IS SIMPLE: TO HELP TRANSGENDER PEOPLE PAY FOR TRANSITION-RELATED COSTS.

Grief Support Gruops Caring Connections https://nursing.utah.edu/grief-support-groups Support groups for people dealing with loss of a loved one, 8 week course offered quarterly

Help Hope Live https://helphopelive.org/ Medical fundraising resource

Hunstman Cancer Institute Supportive Oncology Survivorship (SOS) https://healthcare.utah.edu/huntsmancancerinstitute/treatment/supportive-oncology-survivorship Work with patients and their families both during and after cancer treatment

Huntsman Mental Health Institute https://healthcare.utah.edu/hmhi 801-583-2500 - Resources related to mental health and the various programs available through HMHI

Intermountain Health Brain Injury/TBI Support Group

Emily Redd
emily.redd@imail.org
Intermountain Medical Center (building 1) 5171 South Cottonwood Street Murray, UT 

This support group is for both people with brain injury and their caregivers.  

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Meditation Group

Emily Redd
emily.redd@imail.org
TOSH 5770 South 250 East Murray, UT

Lean and practice skills of meditation

National Brain Tumor Society https://braintumor.org/ National website with rsources for clincal trails, brain tumor facts, etc

Neighborhood House https://nhutah.org/ 801-363-4589 - 1050 West 500 South Salt Lake City, UT 84104
Adult day services program for individuals still living at home. Provide recreational therapy interventions, goal setting (cognitive, social, emotional, physical), community outings, speakers, musicians, gardening, and many other activities during the day (full day or a few hours).

New Choices Waiver https://medicaid.utah.gov/ltc-2/nc/ 800-662-9651 option 6, newchoiceswaiver@utah.gov

The New Choices Waiver Program is designed to serve individuals who are residing long term in a nursing facility, licensed assisted living facility, licensed small health care (Type N) facility or another type of Utah licensed medical institution (except institutions for mental disease).

NRH Peer Mentor Program 801-581-2267

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Paralysis Resource Guide https://www.christopherreeve.org/todays-care/living-with-paralysis/free-resources-and-downloads/paralysis-resource-guide/ Created by the Christopher and Dana Reeves Foundation

Plume https://getplume.co/how-it-works/

The groups are intimate and create a safe, cozy space where you can work through some of your big questions. Each group will consist of people who have experiences in common with you, such as people also taking estrogen or testosterone, folks who are Black and trans/nonbinary, and more to come. You’ll meet once a week for six weeks through Zoom.
 

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Salt Lake County Aging and Adult Services https://slco.org/aging-adult-services/caregiver-support 

Cherise Jensen cjjensen@slco.org
385-468-3200
385-468-3280
2001 S State Street STW S1-600, Salt Lake City, UT 84114
 

This organization/website provides a wide variety of resources for individuals that have experienced stroke as well as their caregivers. Includes information such as: health education, home care, meals on wheels, yard care/snow removal, senior transportation, legal services, Medicare counseling, caregiver support services, volunteer opportunities, senior centers, and job training. Also provides specific resources for caregivers, including the Caregiver Support Program

Seniors Blue Book https://seniorsbluebook.com/local/utah Resources for Aging Well

Spinalpedia www.spinalpedia.com 

The Healing Exchange BRAIN TRUST https://braintrust.org Resource for online support groups for caregivers asn well as support groups for various types of tumors

The Utah Food Bank https://utahfoodbank.org Provides food to those in need.

TRAILS https://www.utrails.us/ 801-581-2526 or 801-581-2885 - Adaptive Recreation, Spinal Cord Injury Education & Community

Trans Resources at the U https://lgbt.utah.edu/resources/transresourceindex.php

The LGBT Resource Center is committed to supporting Trans and Gender Non-Conforming (GNC) students, faculty, and staff at the University of Utah. Below you will find a list of Trans/GNC resources available at the U

Transgender Care Listings http://transcaresite.org/  Provides resource list that can be filtered by state, procedure or other trans specific needs

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Understanding Spinal Cord Injury: A Course for Personal Care Assistants https://kesslerfoundation.org/understanding-spinal-cord-injury-course-personal-care-assistants  A free course for helping train personal care assistants on SCI care developed by Kessler Foundation.

United Spinal Association www.unitedspinal.org 800-404-2898 - National Spinal Cord Injury Resource 

Uniting Caregivers:  Your Pathway of Support https://unitingcaregivers.worldpress.com/

University of Utah Neurologic Injury Support Group healthcare.utah.edu/locations/sugar-house/rehab-therapy

801-581-2221
1280 E Stringham Ave, Salt Lake City, UT 84106 
sydney.beadles@hsc.utah.edu, joshua.holland@hsc.utah.edu or kara.tucker@hsc.utah.edu

Support group through the University of Utah. Occurs second Tuesday of each month from 6:15-7:15 PM.

Utah Department of Health & Human Services https://dhhs.utah.gov/

Multi-Agency State Office Building
195 North 1950 West
Salt Lake City, Utah
84116
(833) 353-3447

Medicare, Medicaid, Physical Disability Waivers, 

Utah Independent Living Center https://uilc.org/en/ 801-466-5565
3445 S Main Street, Salt Lake City, UT 84115 

Provides services, activities, and advocacy to enhance independent living skills of those with disabilities.

Utah State University Aphasia Group

Laura Schmitt
Laura.schmitt@usu.edu
435-797-9059

Meets every Friday @ 1:00
Sorensen Center of Clinical Excellence USU Speech and Lnaguage Clinic 6405 Old Main Hill Logan, UT

WAGS of SCI https://wagsofsci.com/  

Plus wagsofsci instragram A group for wives and girlfriends of individuals with SCI. Resources available on their website, in addition to Instagram and Facebook groups.

Housing, Transportation & Equipment

patient housing

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Ability Found  https://www.abilityfound.org/ Mobility equipment for those in need

Accessible Systems is now Lifeway Mobility https://www.lifewaymobility.com/accessible-systems/ Resource for stair lifts, platform lifts, elevators, bathroom equipment and ramps

ACLU of Utah https://www.acluutah.org/

Air Care Alliance https://www.aircarealliance.org/ Free air travel for those in need to access medical care.

Air Charity Network https://aircharitynetwork.org/ Free air travel for US citizens in need to access medical care.

Airbnb https://www.airbnb.com/salt-lake-city-ut/stays   Short and long-term rental options. Typically come furnished and include all utilities.

Alpine Home Medical https://www.alpinehomemedical.com/ Resource for medical supplies and home equipment

American Occupational Therapy Association (AOTA)   Driving Rehab Provider Search https://myaota.aota.org/driver_search/ Search for certified driving rehab specialists in your area.

Amramp https://amramp.com/ Accessible ramps to rent or purchase. Can also provide some lift systems and bathroom equipment.

Angel Flights https://angelmedflight.com/ This service provides private air transportation for individuals to help access medical care. 

Apartment Guide www.apartmentguide.com   Find apartments and houses for rent.

ASSIST – Emergency Home Repair Program Assist, Inc.

Andres Calderon
801-355-7085
Provides housing repairs to lower income housing, based on inspection. 

ASSIST Community Design Center: The Assist Guidebook to the Accessible Home https://assistutah.org/wp-content/uploads/2015/12/Guidebook.pdf Great home modification resource guide

Association for Driver Rehabilitation Specialists (ADED) https://www.aded.net/page/725 Search here to locate Driving Rehab Specialists in your area. 

Craigslist https://www.craigslist.org/about/sites Search for available apartments and/or homes to rent.

E-G

Equity Utah https://www.equalityutah.org/mission 801-355-3489 - Utah LGBTQAI+ civil rights organization

Flying Angels https://www.flyingangels.com/ Non emergency medical transport with nurse to accompaniment on commercial flights

George E. Wahlen Ogden Veterans Home https://avalonhealthcare.com/ogden/

1102 N 1200 W
Ogden, UT 84404
Phone: 801-334-4300
Fax: 801-392-2172

Website includes an enrollment form.

Give A Mile https://giveamile.org/ A program to provide plane tickets to be with loved ones at end of life for those in need. 

Go Medical https://gomedicalonline.com/?srsltid=AfmBOopwrIRshafIOAe4GRSmdhWcJMlC4_JcHegZCpiREU12hzZ-jkyY An online medical supply wholesaler who offers urological, ostomy, incontinence, wound and other medical supplies. 

H-K

Harrison Pointe Healthcare & Rehabilitation https://harrisonpointehealthcare.com/

3430 Harrison Blvd.
Ogden, UT 84403
Ph: 801-399-5609

VAIH Contracted Facility

Help Hope Live https://helphopelive.org/ Medical fundraising resource

Heritage Park Healthcare & Rehab https://heritageparkrehab.com/

2700 W 5600 S
Roy, UT 84067
Ph: 801-825-9731
Admission: 628-5876
Fax: 801-728-4224

VAIH Contracted Facility
Secure Unit, North

Holladay Healthcare Center https://holladayhealthcare.net/

4782 S. Holladay Blvd.
Holladay, UT 84117
PH: 801-277-7002
Fax: 801-272-0622

VAIH Contracted Facility
Nonsmoking, No motorized wheelchairs, Secure Unit

Idaho State Veterans Home https://veterans.idaho.gov/

1957 Alvin Ricken Dr
Pocatello, ID 
Ph: 208-235-7800

Independent Me, Inc. 

Jenny Smith
801-721-3788

Assists with purchasing medical equipment that is not able to be funded otherwise. Does require a therapist to recommend equipment.

KSL Handicap Accessible https://homes.ksl.com/rent/search/ut/salt-lake-city/homeamenities-handicap-accessible

L

Local Accessible Vans & Vehicle Modification Companies (accessible vans pdf from Rehab Educators)

801-585-3330 or 801-646-8942

Compassion Mobility

https://compassionmobility.com/

1819 N Main St. #9, Spanish Fork, UT 84660 385-279-4447

Mobility Solutions, Inc

https://www.msiutah.com/

231 Cottage Ave., Sandy, UT 84070 801-566-3199

ParaQuad Automobility

https://paraquad.com/

2572 S West Temple, South Salt Lake City, UT 84115 801-487-0111

United Access

https://www.unitedaccess.com/

877-203-9150 info@unitedaccess.com 

Wheelchair Getaways

https://www.accessiblevans.com/locations

M

Mervyn Sharp Bennion Central Utah Veterans Home https://avalonhealthcare.com/payson/

1551 N Main Street
Payson, UT 84651
Phone: 801-465-5400
Fax: 801-465-4872

Website includes an enrollment form.

Midtown Manor

125 S 900 W
Salt Lake City, UT 84104
Ph: 8001-363-6340
Fax: 801-355-2006

VAIH Contracted Facility
Facility is secured with a secured unit

Modivcare https://www.mymodivcare.com/ Provides transportation including wheelchair accessible vans

Mt. Olympus Rehabilitation Center https://mtolympusrehab.com/

2200 E 3300 S
Salt Lake City, UT 84109
Ph: 801-486-2096
Fax: 801-486-0105

VAIH Contracted Facility
Wander-Guard System

N-P

National Center for Transgender Equality https://transequality.org/ (202) 642-4542 -NCTE was founded in 2003 by transgender activists who recognized the urgent need for policy change to advance transgender equality

Paratransit https://www.rideuta.com/Rider-Info/Accessibility/Accessible-UTA/Paratransit-Services For people who are unable to utilize public transport because of physical or cognitive reasons.  Must go through an evaluation process to qualify. 

Patient and Family Housing https://healthcare.utah.edu/locations/patient-family-housing Provides lodging for patients and families during their hospitalization within University Health Care System including Hunstman Cancer Institute.

R-S

Rentler www.rentler.com  

Rides For Wellness https://slco.org/aging-adult-services/senior-transportation/ Provides rides to and from medical appointments, must be 60 or older

Salt Lake City International Airport www.slcairport.com 

Mark Cheminant
ADA Coordinator
mark.cheminant@slcgov.com
801-575-2909; Brooke Orgill, SLC Airport Operations Supervisor brooke.orgill@slcgov.com, 801-575-2850

Contact to coordinate a guided experience to learn how to navigate SLC airport and air travel with a disability

Salt Lake County Aging and Adult Services https://slco.org/aging-adult-services/caregiver-support 

Cherise Jensen cjjensen@slco.org
385-468-3200
385-468-3280
2001 S State Street STW S1-600, Salt Lake City, UT 84114

This organization/website provides a wide variety of resources for individuals that have experienced stroke as well as their caregivers. Includes information such as: health education, home care, meals on wheels, yard care/snow removal, senior transportation, legal services, Medicare counseling, caregiver support services, volunteer opportunities, senior centers, and job training. Also provides specific resources for caregivers, including the Caregiver Support Program

Salt Lake County Housing and Community Development https://slco.org/housing-community-development/home-rehab-repairs-and-housing-development/

385-468-4901
2001 South State Street, S2-100, Salt Lake City, UT, 84114

Provides overview of local home rehabilitation services, must qualify on low-income status.

Sandstone Healthcare Center American Fork https://sandstonehc.com/locations/american-fork/

350 E 300 N
American Fork, UT 84003
Ph: 801-756-5293
Fax: 801-756-8705

VAIH Contracted Facility
Secure Unit

Sandstone Healthcare Center Brigham City https://sandstonehc.com/locations/brigham-city/

775 N 200 E
Brigham City, UT 84302
Ph: 435.723.7777
Fax: 435.723.8773

VAIH Contracted Facility
Wander-Guard System

Sandstone Healthcare Center Millcreek https://sandstonehc.com/locations/millcreek/

3855 S 700 E
SLC, UT 84106
Ph: 801.268.4766
Fax: 801.883.8934

VAIH Contracted Facility
Wander-Guard System
Vent/Trach, High Flow O2

Sandstone Healthcare Center Nephi https://sandstonehc.com/locations/nephi/

1100 N 400 E
Nephi, UT 84648
Ph: 435-623-1721
Fax: 435-623-5821

VAIH Contracted Facility
Facility is secured

Southern Utah Veteran Home https://avalonhealthcare.com/ivins/

160 North 200 East
Ivins, UT 84738
Phone: 435-634-5220 
Fax: 435-673-5839

Website includes an enrollment form.

T-U-V

Tender Care Home Health and Hospice https://www.homewithmission.com/locations/tender-care/

1751 W Alexander St.
Suite 106
West Valley, UT 84119
801-335-0522

Skilled Nursing Care, PT, OT, SLP, Home Health Aids, Medical Social Worker, DME

Tooele County Housing Authority https://housingtc.org/ (435)882-7875
66 West Vine Street Tooele, UT 84074

Transgender Law Center https://transgenderlawcenter.org/ 510-587-9696 - Transgender Law Center is the largest national trans-led organization advocating self-determination for all people

TSA Cares tsa.gov/travel/passenger-support
https://www.tsa.gov/contact-center/form/cares 855-787-2227 - Assist passengers navigating the airport through security, contact your airline directly for wheelchair assistance

United Access https://www.braunability.com/unitedaccess/us/en.html Wheelchair Accessible Rental and Purchase Options

University Guest House https://universityguesthouse.com/University-Guest-House Provides lodging for patients and families during their hospitalization within University Health Care System including Huntsman Cancer Institute. 

University of Utah Hospital and Clinics Preferred Lodging List https://healthcare.utah.edu/documents/hotel-accommodations-salt-lake-city-university-of-utah-health-2-2023

UTA on Demand https://www.rideuta.com/Services/UTA-On-Demand app based as well - transportation options in Salt Lake area, is also wheelchair accessible

Utah Community Action https://utahca.org/ Utah Community Action is one of the largest nonprofit agencies dedicated to fighting poverty and its root causes in Utah

Utah Independent Living Center https://uilc.org/en/ 801-466-5565
3445 S Main Street, Salt Lake City, UT 84115
Provides services, activities, and advocacy to enhance independent living skills of those with disabilities.

Idaho Centers for Independent Living https://silc.idaho.gov/idaho-centers-for-independent-living/

Montana https://dphhs.mt.gov/detd/independentliving/Center

 

VRBO https://www.vrbo.com/es-mx/search/keywords:salt-lake-city-utah-united-states-of-america?petIncluded=false&preferlocale=true  

W-Z

Wheelchair Getaways https://www.wheelchairgetaways.com/ Short Term Wheelchair Accessible Rental Options

William E Christofferson Salt Lake Veterans Home https://avalonhealthcare.com/slveterans/

700 Foothill Blvd
SLC, UT 84113
Phone: 801-584-1900
Fax: 801-584-1960

Website includes an enrollment form.

Driving Assessment https://healthcare.utah.edu/locations/sugar-house/rehab-therapy/drive-rehab-program 801-581-2221 Driving Assessment - Local Accessible Vans & Vehicle Modification Companies Resource List

See accessible Vans pdf from Rehab Educators 801-585-3330 or 801-646-8942

Compassion Mobility https://compassionmobility.com/ 1819 N Main St. #9, Spanish Fork, UT 84660 385-279-4447 - Accessible Vans for sale

Mobility Solutions, Inc https://www.msiutah.com/ 231 Cottage Ave., Sandy, UT 84070 801-566-3199 - Accessible Vans for Sale, Hand Controls and Seating Solutions

MobilityWorks https://www.mobilityworks.com/

68 E 3300 S, South Salt Lake, UT 84115
801-988-6548

Accessible vans for sale or rental, 

ParaQuad Automobility https://paraquad.com/ 2572 S West Temple, South Salt Lake City, UT 84115 801-487-0111 - Accessible Vans for sale and Vehicle Modifications

United Access https://www.unitedaccess.com/ 877-203-9150 info@unitedaccess.com  - Accessible Vans for Sale & Rental Options

Wheelchair Getaways https://www.accessiblevans.com/locations Accessible Van Rentals

Education & Employment

Salt Lake City

A-C

ABLE National Resource Center https://www.ablenrc.org/ Their mission is to educate, promote and support achieving a better life experience (ABLE) act for individuals with disabilities and their families.

Accessible College http://acessiblecollege.com Provides consultation and resources to individuals with disabilities transitioning to higher education

Amputee Coalition https://www.amputee-coalition.org/ To support, educate, and advocate for people impacted by limb loss and limb difference.

California Vocational Rehabilitation https://www.dor.ca.gov/Home/VocationalRehabilitation  Free program to assist with returning to work or school. Can also assist with independent living, assistive technology and career counseling.

Craig H. Neilsen Foundation https://chnfoundation.org/ The foundation's funding is dedicated to supporting both programs and scientific research to improve the quality of life for those living with spinal cord injury.

Craig H. Neilsen Scholarship https://chnfoundation.org/programs/neilsen-scholarship-program/  Scholarship program for individuals with spinal cord injuries.

D-F

Facing Disability https://facingdisability.com/ Watch videos and/or connect with others living with SCI, their families and health care professionals

G-M

Model Systems Knowledge Translation Center https://msktc.org/ Research Based Rehabilitation Resources

Montana Vocational Rehabilitation https://dphhs.mt.gov/detd/vocrehab/ 

N-P

Nevada Vocational Rehabilitation https://detr.nv.gov/Page/Vocational_Rehabilitation 

Paralysis Resource Guide https://www.christopherreeve.org/todays-care/living-with-paralysis/free-resources-and-downloads/paralysis-resource-guide/ Created by the Christopher and Dana Reeves Foundation

Q-S

Spinal Cord Injury Research Evidence (SCIRE) Professional home - SCIRE Professional (scireproject.com) SCI evidence based research resource

Seniors Blue Book https://seniorsbluebook.com/local/utah Resources for Aging Well

Spinalpedia www.spinalpedia.com 

T-U

Utah Community Action https://utahca.org/ Utah Community Action is one of the largest nonprofit agencies dedicated to fighting poverty and its root causes in Utah

Utah Department of Health & Human Services https://dhhs.utah.gov/

Multi-Agency State Office Building
195 North 1950 West
Salt Lake City, Utah
84116
(833) 353-3447

Medicare, Medicaid, Physical Disability Waivers, 

Utah Department of Workforce Services https://jobs.utah.gov/ or dwscontactus@utah.gov, 801-526-WORK (9675) Website provides information about applying for temporary assistance, including disability services (e.g., vocational rehabilitation). Services are also provided that help determine medical eligibility for social security disability claims.

V-Z

Vocational Rehabilitation ID https://vr.idaho.gov/

844-324-3983
650 West State Street Room 150 Boise, ID 83720

Job retraining and resources information to return to work.

Vocational Rehabilitation MT https://dphhs.mt.gov/detd/vocrehab/

877-296-11197
111 North Last Chance Gulch Suite 4C Helena, MT 59604

Job retraining and resources information to return to work.

Vocational Rehabilitation WY https://dws.wyo.gov/dws-division/vocational-rehabilitation/ 307-777-8650
5221 Yellowstone Road Cheyenne, WY 82002 - Job retraining and resources information to return to work.

Vocational Rehabiltiation NV https://detr.nv.gov/Page/Rehabilitation_Division_Bureau_of_Vocational_Rehabilitation

Southern NV: 702-486-5230
Northern NV: 775-687-6860

Job retraining and resources information to return to work.

Vocational Rehabiltiation UT https://jobs.utah.gov/usor/vr/index.html 801-526-WORK (9675) Job retraining and resources information to return to work.

Work Ability Utah  https://jobs.utah.gov/usor/vr/pathways.html

Aaron Thompson, Rehabilitation Services Director athompson@utah.gov  or Leah Lobato, Director, Govenor's Committee on People with Disabilities & Business Relations Director leahlobato@utah.gov 

Strives to increase employment and health care outcomes for individuals with disabilities in Utah.

Wyoming Vocational Rehabilitation https://dws.wyo.gov/dws-division/vocational-rehabilitation/  

Recreation & Leisure

Rehab Ping Pong
Wheelchair in forest

Challenged Athletes Foundation www.ChallengedAthletes.org  858-866-0959 - Grants for adaptive sports equipment; Grant application period generally runs September-early November

National Ability Center National Ability Center - Adaptive Recreation and Adventure

435-649-3991
1000 Ability Way, Park City, UT 84060
info@discovernac.org  - Provides sport, recreation and educational programs. 

Paralysis Resource Guide 

https://www.christopherreeve.org/todays-care/living-with-paralysis/free-resources-and-downloads/paralysis-resource-guide/ Created by the Christopher and Dana Reeves Foundation

TRAILS 

https://www.utrails.us/ 801-581-2526 or 801-581-2885 - Adaptive Recreation, Spinal Cord Injury Education & Community

Visit Utah: Accessible Recreation Guide for Utah 

https://www.visitutah.com/plan-your-trip/accessible-utah

Wasatch Adaptive Sports 

Home - Wasatch Adaptive Sports  801-933-2188

Snowbird Ski and Summer Resort, 9385 S, Snowbird Center Dr., Snowbird, Utah 84092 
info@wasatchadaptivesports.org  Provides adaptive sport programming. This includes year-round recreational, educational, and social programs. Requires no initial fee and provides full or partial scholarships

Parenting & Sex

Patty Brisben Foundation Welcome - The Patty Brisben Foundation Research and education on women's sexual health

PleasureABLE: Sexual device manual for persons with disabilities PleasureABLE-Sexual-Device-Manual-for-PWD.pdf (icord.org) Examples of how to engage in intimacy with a disability.

SCI Sexual Health British Columbia (BC) Spinal Cord Injury Sexual Health Website - Sex and SCI (scisexualhealth.ca) Great resource on all topics related to sexual health and parenting with SCI out of Canada.

The Sexual Health Network https://www.drmitchelltepper.com/sex_and_paralysis_video_series Dr. Mitchell Temper's Sex and Paralysis Video Series

WAGS of SCI https://wagsofsci.com/
Plus wagsofsci instragram A group for wives and girlfriends of individuals with SCI. Resources available on their website, in addition to Instagram and Facebook groups.

More Sex Health Resources

lgbtqia

Trans Resources at the U

https://lgbt.utah.edu/resources/transresourceindex.php

Transgender Care Listings http://transcaresite.org/ 

Transgender Law Center https://transgenderlawcenter.org/

510-587-9696

TransMission-The Loft https://www.loftgaycenter.org/transmission

U-Z

University of Utah Transgender Program

https://healthcare.utah.edu/transgender-health/  

801-213-2195

Utah Pride Center https://utahpridecenter.org/

VHA LGBTQ+ Health Program https://www.patientcare.va.gov/lgbt/

Veterans Care Resources

Hunter Seven Foundation https://hunterseven.org/ Research, education and assistance for veterans with cancer. 

Idaho State Veterans Home https://veterans.idaho.gov/

1957 Alvin Ricken Dr
Pocatello, ID 
Ph: 208-235-7800

The Independence Fund https://independencefund.org/ Mobility, caregiving, family and adovacy programing available.

VHA LGBTQ+ Health Program https://www.patientcare.va.gov/lgbt/

Yes, You Can Manual! https://pva.org/wp-content/uploads/2021/09/yes-you-can_digital.pdf Guide for people living with SCI and their caregivers from the Paralyzed Veterans of America.

american flags

Hope & Motivation

Hope and motivation

A-B

A Wonderful Stroke of Luck: From Occupational Therapist to Patient and Beyond - Book by Janet R. Douglas

Adaptive Parent Project - Instagram

Woman with cerebral palsy that primarily uses as manual wheelchair - Social Media

Any One of Us (2019) - Movie

Documentary of a professional mountain biker that had a SCI

Breathe (2017) - Movie - Based on a true story of a couple, husband uses a ventilator due to polio

Brittany Fisher Frank - Instagram Social Media

C-E

Daniizzie - Instagram Social Media

Empower Spinal Cord Injury Camp and Program https://www.empowersci.org/ Camp for individuals with SCI to gain skills and continue reaching rehab goals. Must apply to participate, see website for cost/details.

Endless Abilities: The story of our ability to adapt, our ability to love (2013) - Movie - Documentary focused on adaptive recreation

F-G

Facing Disability - Facebook Group Social Media

Facing Disability https://facingdisability.com/ Watch videos and/or connect with others living with SCI, their families and health care professionals

Full Catastrophe Living - Book by Jon Kabat-Zinn

H-J

Joni: An Unforgettable Story - Joni Eareckson Tada, Joe Musser - Book

Just Don’t Fall: How I Grew Up, Conquered Illness, and Made It Down the Mountain - Josh Sundquist - Book

L-M

Life Between Two Gardens: Finding Purpose and Embracing Hope Amid Life’s Greatest Challenges Book by Steven Edgely, MD

Living with Stroke:  A Guide for Patients and Their Families - Book by Richard, C. Senelick, MD 

Luckey (2008) Movie - Documentary of a paralyzed artist

Mama Zooms (Children's Book) Jane Cowen-Fletcher by Book

Mindfulness: An Eight-Week Plan for Finding Peace in a Frantic World - Book by Mark Williams & Danny Penman

Murderball (2005) Movie - Documentary of the Paralympic tetraplegic rugby team

My Stroke of Insight:  A Brain Scientist's Personal Journey - Book by Jill Bolte Tayler, PhD

O-P

Paralysis Resource Guide Created by the Christopher and Dana Reeves Foundation https://www.christopherreeve.org/todays-care/living-with-paralysis/free-resources-and-downloads/paralysis-resource-guide/

Q-R

Quad Gods (movie) Available on HBO Max Documentary film about an e-sports team with tetraplegia from New York

Resilient.comm - Instagram Social Media

Roll.with.cole - Instagram Social Media

RollingwithLina - Instagram Social Media

S-T

Sitting Pretty: The View from My Ordinary Resilient Disabled Body - Rebekah Taussig - Book

SittingPretty Instagram Social Media

Spinalpedia www.spinalpedia.com 

The Headspace Guide of Meditation and Mindfulness: How Mindfulness Can Change your Life in Ten Minutes a Day - Book by Andy Puddicombe

The Other Side of the Mountain (1975) Movie -Based on a true story of a young ski champion that has an accident resulting in a SCI while her friend has a similar presentation after contracting polio.

The Power of Now - Book by Eckart Tolle

The Upside (2017) Movie - Based on a true story, a wealthy man with tetraplegia and his relationship with his caregiver

Thriving After Your Stroke:  Rebuilding the Mind and Body to Create a Meaningful Life - Book by Steven Edgely, MD

U-Z

Unbeaten (2009) Movie - Documentary of 31 individuals with paraplegia doing the toughest road race in the world using hand cycles

Unite 2 Fight Paralysis https://u2fp.org/ Unite 2 Fight Paralysis exists to unite and empower the international spinal cord injury community to cure paralysis through advocacy, education, and support for research.

WAGS of SCI

https://wagsofsci.com/
Plus wagsofsci instragram

A group for wives and girlfriends of individuals with SCI. Resources available on their website, in addition to Instagram and Facebook groups.

Wheel Mommies

Facebook Group/Social Media

When I Walk (2013) Movie - Documentary about a man with MS and his journey

Wherever You Go, There You Are - Book by Jon Kabat-Zinn

Women on Wheels Support Group womenonwheelsnyc - instragram
 

A support group for women with SCI, based out of NY with many virtual offering 

YouTube Channels for SCI Content

https://www.youtube.com/@ParalyzedLiving

https://www.youtube.com/@KeepOnRollin 

https://www.youtube.com/@TheWheelchairDad

ParalyzedLiving
                                                                                                                                                                                                                                                                 @Keeponrollin
                                                                                                                                                                                                                                                                 @Thewheelchairdad

Videos on transfers, everyday tips for living with paralysis

Just Don’t Fall: How I Grew Up, Conquered Illness, and Made It Down the Mountain - Book by Josh Sundquist

Mama Zooms (children's book) 

Jane Cowen-Fletcher - A boy's wonderful mama takes him zooming everywhere with her, because her wheelchair is a zooming machine.

Sitting Pretty: The View from My Ordinary Resilient Disabled Body - Book by Rebekah Taussig

Adapted Clothing & Personal Care

Adaptive clothing

Patti + Ricky Adaptive Clothing

https://www.pattiandricky.com

303-578-6594; TTY 1-800-439-2370; info@pattiandricky.com

Rebound Wear https://www.reboundwear.com

(646) 688-3450; info@reboundwear.com

Smart Adaptive Clothing https://smartadaptiveclothing.com  

(267) 818 – 4407; info@smartadaptive.com

Billy Footwear

Bobby the Bladder (interactive animation for bladder management education)

Books to Read

Reading Recommendations

Please note the books provided in this resource list may not reflect the values or beliefs of Neilsen Rehabilitation Hospital. Always seek medical advice from your physician.

Young underrepresented girl in a wheelchair hugging her friend
  • The Ultimate Guide to Sex and Disability: For All of Us Who Live with Disabilities, Chronic Pain, and Illness -Book By Miriam Kaufman, Cory Silverberg and Fran Odette (2007)

Mindfulness 

  • The Mindful Way Through Depression - Book Mark Williams, John Teasdale, Zindel Segal, & Jon Kabat-Zinn
  • Mindfulness in Plain English - Book Bhante Gunaratana
  • Guided Mindfulness Meditation - Series 1, 2 & 3 Audible Jon Kabat-Zinn
  • Mindfulness: An Eight-Week Plan for Finding Peace in a Frantic World - Book by Mark Williams & Danny Penman
  • The Headspace Guide of Meditation and Mindfulness: How Mindfulness Can Change your Life in Ten Minutes a Day - Book by Andy Puddicombe

Movies & Videos to Watch

Please note the movies and videos provided in this list may not reflect the values or beliefs of Neilsen Rehabilitation Hospital. Always seek medical advice from your physician.

  • Any One of Us (2019)Documentary of a professional mountain biker that had a spinal cord injury 
  • Breathe (2017)Based on a true story of a couple where the husband is on a ventilator due to polio
  • The Upside (2017)Based on a true story, a wealthy man with tetraplegia and his relationship with his caregiver
  • Endless Abilities (2013)Documentary focused on adaptive recreation
  • When I Walk (2013)Documentary about a man with multiple sclerosis and his journey
  • Unbeaten (2009)Documentary of 31 individuals with paraplegia who are hand-cycling the toughest road race in the world
  • Luckey (2008)Documentary of a paralyzed artist

Social Media Accounts

Recommendations to Follow

Please note the social media accounts provided here may not reflect the values or beliefs of Neilsen Rehabilitation Hospital. Always seek medical advice from your physician.

girl in a wheelchair smiling

Online apps

man on cell phone

Big Magnify Free App

Calm App

Come Back Strong App

DownDog App

Elevate App

Glasses App

Habatica App

Headspace App

Lumosity App

Medisafe App

Peak App

UCLA Mindful App

Vocal Eyes App

Waking Up App

PDF Documents

Reading online

PDFs are available from Neilsen Rehabilitation Patient Educators

Ask an educator for documents on VA and travel support

ASSIST Community Design Center: The Assist Guidebook to the Accessible Home Great home modification resource guide.

American College of Lifestyle Medicine Patient Handouts

PleasureABLE: Sexual device manual for persons with disabilities Examples of how to engage in intimacy with a disability.

Yes, You Can! yes-you-can_digital.pdf Guide for people living with SCI and their caregivers from the Paralyzed Veterans of America.

The National Council on Disability:

https://acrobat.adobe.com/id/urn:aaid:sc:VA6C2:e56e3f90-b88b-4a15-b160-a1c69095900c 

Hear From Our Specialists