Resources by Topic
Please note the resources provided in this list may not reflect the values or beliefs of Neilsen Rehabilitation Hospital. Always seek medical advice from a physician. To provide feedback please email us at nrhresources@utah.edu
SERVICES & SPECIALTIES
Health & Wellness Support
CRISIS
Call 988 - Suicide & Crisis Lifeline https://988lifeline.org/ - Free, confidential mental health support
A
Al-Anon https://utah-alanon.org/ Support for families and friends of alcoholics
Alcoholics Anonymous https://www.aa.org/ Provides resources to find help and support for alcohol abuse around the country.
American College of Lifestyle Medicine https://lifestylemedicine.org/ The American College of Lifestyle Medicine is a society of medical professionals united to reverse chronic disease.
American Heart Association (AHA) https://www.heart.org/ A wonderful resource for cardiac and stroke individuals and their families/caregivers. Their website has research, healthy recipes and lifestyle recommendations for heart attack and stroke prevention and care.
American Heart Association (AHA) Stroke Walk http://www2.heart.org/site/TR?fr_id=4219&pg=entry
Michelle Arredondo 801-702-4426
Sugar House Park, 1330 E 2100 S, Salt Lake City, UT 84106
This is a walk centered around supporting and celebrating survivors. Proceeds go to fighting heart disease and stroke. Health booths will be set up to provide information, activities, and giveaways
Amputee Coalition https://www.amputee-coalition.org/ To support, educate, and advocate for people impacted by limb loss and limb difference.
B
Balance and Mobility Clinic https://healthcare.utah.edu/locations/balance-mobility/ Focus on regaining balance/strength after a disability or injury. Also provide pelvic floor interventions. 801-587-9161 University of Utah, Health Sciences Education Building, 520 Wakara Way, Salt Lake City, UT, 84108
BE Nutrition https://www.benutritionco.com/ 704-380-9924 - Focus towards women's healthy eating; available virtually
Bobby the Bladder: Interactive animation for bladder management education https://gamejolt.com/games/bobby-the-bladder/651307
Asta Cath Female Catheter Guide https://commedpro.com/product/asta-cath-female-catheter-guide/
C-D
CDC Heart Disease and Stroke Prevention https://www.cdc.gov/dhdsp/index.htm Resource for stroke related health information and prevention.
Center for Change https://centerforchange.com/ 888-224-8250 - 1790 North State Street Orem, UT - Clinic for Eating Disorders
Center for Healing Therapies https://www.healingtherapies.net/ - 699 E. South Temple - 801-725-9594 - Mental health services for individuals, couples and families (includes LGBTQ+ community).
Center for Human Potential https://c4hp.com/ 801-483-2447 - 265 E. 100 S - Mental health services for personal use or businesses.
City Center Psychology https://www.citycenterpsych.com/ 385.831.0200 - Mental health services in downtown Salt Lake City area.
Compass Counseling and Consulting https://www.cccslc.com/ 801-639-9544 - Mental health services offered both in person and nationally. Also provide free webinar content on mental related topics.
Comprensive Psychological Services https://wecanhelpout.com Mental health services with various locations throughout Utah.
Craig H. Neilsen Foundation https://chnfoundation.org/ The foundation's funding is dedicated to supporting both programs and scientific research to improve the quality of life for those living with spinal cord injury.
E-F
Empower Spinal Cord Injury Camp and Program https://www.empowersci.org/ Camp for individuals with SCI to gain skills and continue reaching rehab goals. Must apply to participate, see website for cost/details.
Equinox Counseling Services https://www.equinoxcounselingservices.com/ 801-450-2798 - 923 East Executive Drive Murray, UT - Mental health services for individuals, couples and families.
Find A Therapist https://www.psychologytoday.com/us/therapists/ A search engine to help find a mental health therapist in your area.
Full Circle Yoga and Therapy www.fullcircleut.com 385-528-2950 - 1719 S. Main Street Salt Lake City, UT 84115 - Provides free yoga to patients with stroke or brain injury.
G-H
Guided Eating https://guidedeating.com/ 801-691-8090 - 3325 North University Avenue Provo, UT
Healing Pathways Therapy Center https://www.healingpathwaystherapy.com
info@pathwaysutah.com
435-248-2089
Highland Springs Clinc https://highlandspringsclinic.org/ 800-403-0295
Behavioral Health in Utah, Idaho
Home and Community Based Services-Utah https://medicaid.utah.gov/ltc-2/ Descriptions of Medicaid waivers available to keep patients in their homes
Huntsman Mental Health Institute https://healthcare.utah.edu/hmhi 801-583-2500 - Resources related to mental health and the various programs available through HMHI
J-L
Jim Collins Foundation https://jimcollinsfoundation.org/apply/ Apply for grants to assisit with sexual reassignment surgery costs
L.G. Skaggs Wellness Center https://healthcare.utah.edu/locations/skaggs/ 801-213-8720 - University of Utah, 530 Wakara Way, Salt Lake City, UT 84108 - Provides customized health and wellness programming for individuals in the community, including fitness testing/prescription, massage, nutrition consultation, supervised gym membership, wellness coaching, and a variety of classes/workshops.
LGBTQ+-Affirmative Therapist Guild of Utah http://www.lgbtqtherapists.com/index.html Find therapists for LGBTQAI+ people
M-O
Neuro Pro Bono Clinic:
Julia Bakun at julia.bakun@utah.edu or Lauren Sotelo at lauren.sotelo@utah.edu - University of Utah, Health Sciences Education Building, 520 Wakara Way, Salt Lake City, UT, 84108 - Provide quality physical therapy services to underserved and under-insured individuals in the greater Salt Lake area.
Out2Enroll https://out2enroll.org/ Out2Enroll is a national initiative launched in September 2013 to connect our communities—LGBT people and our families, friends, and allies—with the new health insurance coverage options available under the Affordable Care Act.
P
Paralysis Resource Guide https://www.christopherreeve.org/todays-care/living-with-paralysis/free-resources-and-downloads/paralysis-resource-guide/ Created by the Christopher and Dana Reeves Foundation
Phoenix Rebellion Therapy https://phoenixrebelliontherapy.com/ 385-231-8387 Directed toward military, police forces or significant trauma.
Point of Pride https://www.pointofpride.org/annual-transgender-surgery-fund Point of Pride’s Annual Transgender Surgery Fund is a scholarship-like program that provides direct financial assistance to trans folks who cannot afford their gender-affirming surgery.
Positive Change Nutrition https://positivechangenutrition.com/ 435-754-7120 - 1638 North 200 West Logan, UT
Positive Nutrition https://www.positive-nutrition.com/ 801-948-0898 - 2936 South Highland Drive - Developing healthy eating habits
Potenza Psychotherapy https://www.drjessiesmith.com/ 159 W Broadway Suite - 801-200-3222 - Psychotherapy directed towards the trans community
POW Therapy: Place of Optimal Wellness https://www.powtherapy.com/ 435-731-9083 - specializes in sex therapy, EMDR therapy and holistic health.
Q-R
Red Willow Counseling and Recovery https://www.redwillowcounseling.com 385-313-0055 - 1425 South 700 East
Rehab Without Walls NeuroSolutions https://www.rehabwithoutwalls.com/
4548 South Atherton Drive
Suite 260
Taylorsville, Utah 84123
(801) 264-0213
Home and Community Based Rehabilitation, CARF Accredited by Brain Injury and Spinal Cord Injury
Riverwoods Behavioral Health https://www.rbh.care/ 801-787-9855
Rock Steady Boxing https://rocksteadyboxing.org/find-a-class/#go_here Adaptive non-contact boxing skills for individuals with Parkinson's Disease
S
Sage Family Counseling https://sagefamilycounseling.com/ 801-432-0883 - locations in Draper and Heber
Salt City Psychology saltcitypsychology@gmail.com 801-758-7370
Salt Lake County Community Centers https://slco.org/parks-recreation/facilities-and-golf/Recreation-Centers/ 385-468-1800 - Recreation centers offer individual and group fitness opportunities including learn-to classes, drop-in fitness, leagues, teams weight rooms, sports and child care. Locations throughout the Wasatch Front
Salt Lake County Senior Centers Senior Centers - Aging & Adult Services | Salt Lake County 385-468-3200 - Aging and adult services offers a comprehensive range of programs to enlighten, education and enrich the lives of adults age 60 and over.
Spinal Cord Injury Research Evidence (SCIRE) Professional home - SCIRE Professional (scireproject.com) SCI evidence based research resource
Seniors Blue Book https://seniorsbluebook.com/local/utah Resources for Aging Well
Sorensen Legacy Foundation Center for Clinical Excellence https://cehs.usu.edu/scce/services/clinical-rehabilitation-counseling 435-797-3403 - Based through Utah State University
Sugarhouse Outpatient Clinic Sugar House Therapy Services | University of Utah Health 801-581-2211 - 1280 E Stringham Ave, Salt Lake City, UT 84106 - There are a wide array of services provided in this clinic including therapy services, outpatient services, wellness program, group therapy and return to driving program.
Sundance Behavioral Resources https://www.sundancebehavioral.com/ 801-264-9522
T-U
Tanner Dancers with Disabilities Camp https://tannerdance.utah.edu/dwd-camps/
U of U
201 Presidents Circle
SLC, UT 84112
801-581-7200 Camps or Saturday Classes
The Counseling Center https://counselingcenterut.com (801) 934-3373
TRAILS https://www.utrails.us/ 801-581-2526; 801-581-2885 - Adaptive Recreation, Spinal Cord Injury Education & Community
TransMission-The Loft https://www.loftgaycenter.org/transmission The TransMission program provides financial assistance of up to $500 for expenses related to social, legal, medical, or surgical transition. Applicants must be over 18 years of age and reside within the United States. Priority will be given to residents of New York’s Hudson Valley. All are welcome to apply.
Unite 2 Fight Paralysis https://u2fp.org/ Unite 2 Fight Paralysis exists to unite and empower the international spinal cord injury community to cure paralysis through advocacy, education, and support for research.
University of Utah Rehabilition Psychology https://medicine.utah.edu/pmr/rehab-psych/ 801-581-6228 -
50 North Medical Drive Salt Lake City, UT 84132 - This is a service provided by the University of Utah’s school of medicine. This program provides psychological support for persons attempting to cope with conditions such as stroke.
University of Utah Stroke Treatment https://healthcare.utah.edu/neurosciences/neurology/stroke/#stroketreatment
801-587-9935 or 801-585-7575
Clinical Neurosciences Services, 175 North Medical Drive East, Salt Lake City, UT 84132 - This website provides a variety of info regarding stroke treatment/services at the University of Utah, including: finding a specialist, stroke care 24/7, causes of stroke, signs of strokes, stroke treatment, clinical trials, and the health feed which includes health info regarding stroke (e.g., preventing caregiver burnout).
Utah Center for Evidence Based Treatment https://www.ucebt.com/ 801-419-0139
Utah Community Action https://utahca.org/ Utah Community Action is one of the largest nonprofit agencies dedicated to fighting poverty and its root causes in Utah
Utah Department of Health & Human Services https://dhhs.utah.gov/
Multi-Agency State Office Building
195 North 1950 West
Salt Lake City, Utah
84116
(833) 353-3447 Medicare, Medicaid and Physical Disability Waivers
Utah Independent Living Center https://uilc.org/en/ 801-466-5565 - 3445 S Main Street, Salt Lake City, UT 84115 - Provides services, activities, and advocacy to enhance independent living skills of those with disabilities.
V-Z
Wasatch Psychological Services https://wasatchpsych.com (801) 590-0525
Weber County Aging Human Services https://www.weberhsaging.net/
Wyoming Home Services Program https://health.wyo.gov/aging/communityliving/community-living-section-programs/wyhs/
Finance & Legal
A-C
ABLE National Resource Center https://www.ablenrc.org/ Their mission is to educate, promote and support achieving a better life experience (ABLE) act for individuals with disabilities and their families.
Able Utah Savings Plan https://ableut.com/ A savings account for individuals with disabilities that is tax-free and won't impact other needs-based benefits, each state has a version of this program.
Advanced Care Directive https://ucoa.utah.edu/coreissues/directives/
Americans with Disabilities Act https://www.ada.gov/ Legal rights resource
Craig H. Neilsen Foundation https://chnfoundation.org/ The foundation's funding is dedicated to supporting both programs and scientific research to improve the quality of life for those living with spinal cord injury.
D-F
Disability Law Center: Low Cost Legal Services https://disabilitylawcenter.org/ 800-662-9080
960 South Main Street, Salt Lake City, UT 84101 - Provides services to individuals regarding discrimination due to disability (e.g., assistive technology, housing, community living).
Division of Services for People with Disabilities (DSPD) https://dspd.utah.gov/services/ Provide a variety of services to individuals with disabilities depending on qualification.
G-H
Go Medical https://gomedicalonline.com/?srsltid=AfmBOopwrIRshafIOAe4GRSmdhWcJMlC4_JcHegZCpiREU12hzZ-jkyY An online medical supply wholesaler who offers urological, ostomy, incontinence, wound and other medical supplies.
Good Rx https://www.goodrx.com/ A website to search for prescription coupons
Help Hope Live https://helphopelive.org/ Medical fundraising resource
S-Z
Social Security www.ssa.gov Information regarding retirement, supplemental security income (SSI), Medicare, disability benefits.
Social Security Office Salt Lake https://www.ssofficelocation.com/apply-for-social-security 866-851-5275 or 801-524-5047
175 E 400 S #500, Salt Lake City, UT 84111 - Information regarding retirement, supplemental security income (SSI), Medicare, disability benefits.
The Limb Preservation Foundation https://limbpreservation.org/financial-support/ Provides financial support for living expenses while patients are undgoigng treatment for limb threatening conditions.
The Utah Food Bank https://utahfoodbank.org Provides food to those in need.
Utah Community Action https://utahca.org/ Utah Community Action is one of the largest nonprofit agencies dedicated to fighting poverty and its root causes in Utah
Medical Information & Care
A-C
American Brain Tumor Association https://www.abta.org Brain tumor education on types, treatments and caregiving
American College of Lifestyle Medicine https://lifestylemedicine.org/ The American College of Lifestyle Medicine is a society of medical professionals united to reverse chronic disease.
American Heart Association (AHA) https://www.heart.org/ A wonderful resource for cardiac and stroke individuals and their families/caregivers. Their website has research, healthy recipes and lifestyle recommendations for heart attack and stroke prevention and care.
Amputee Coalition https://www.amputee-coalition.org/ To support, educate, and advocate for people impacted by limb loss and limb difference.
Aphasia Association Homepage - The National Aphasia Association The National Aphasia Association
Canadian Spinal Cord Injury Practice Guidelines for Adults Can-Scip (kite-uhn.com) Canadian Spinal Cord Injury Practice (CAN-SCIP) Guidelines for adults last updated in 2021
Care Cure Community https://www.carecure.net/ Forums and articles on SCI related topics and research
CDC Heart Disease and Stroke Prevention https://www.cdc.gov/dhdsp/index.htm Resource for stroke related health information and prevention.
Clinical Trials https://www.clinicaltrials.gov/ View and register for ongoing clinical trials
Craig H. Neilsen Foundation https://chnfoundation.org/ The foundation's funding is dedicated to supporting both programs and scientific research to improve the quality of life for those living with spinal cord injury.
D-E
Division of Services for People with Disabilities (DSPD) https://dspd.utah.gov/services/ Provide a variety of services to individuals with disabilities depending on qualification.
F-L
Facing Disability https://facingdisability.com/ Watch videos and/or connect with others living with SCI, their families and health care professionals
Go Medical https://gomedicalonline.com/?srsltid=AfmBOopwrIRshafIOAe4GRSmdhWcJMlC4_JcHegZCpiREU12hzZ-jkyY An online medical supply wholesaler who offers urological, ostomy, incontinence, wound and other medical supplies.
Good Rx https://www.goodrx.com/ A website to search for prescription coupons
M-N
Maliheh Free Clinic https://malihehfreeclinic.org/ 941 E. 3300 S, Millcreek, UT 84106 - Provide health care services to underserved and under-insured individuals in the greater Salt Lake area.
Medicare https://www.medicare.gov/
Medicare: Care Compare https://www.medicare.gov/care-compare/ Allows you to compare nursing homes, doctors, hospitals who accept Medicare patients
Midvale Community Building Community (CBC) Clinic https://www.midvalecommunityclinic.com/ 385-887-9002 - Center St, Midvale, UT 84047 - Provide health care services to underserved and under-insured individuals in the greater Salt Lake area.
Model Systems Knowledge Translation Center https://msktc.org/ Research Based Rehabilitation Resources
Model Systems Burn Factsheet https://msktc.org/burn/factsheets Burn Injury Resources
MyChart https://mychart.med.utah.edu/mychart/Authentication/Login 801-213-5555 Call the help line to trouble shoot MyChart related issues. MyChart App also available.
Myomo https://myomo.com/ A wearable device to promote arm function for qualifying individuals.
National Brain Tumor Society https://braintumor.org/
P-R
Paralysis Resource Guide https://www.christopherreeve.org/todays-care/living-with-paralysis/free-resources-and-downloads/paralysis-resource-guide/ Created by the Christopher and Dana Reeves Foundation
Rebirth Health Center https://rebirthhealthcenter.com/ 801-272-3909 - Rebirth Health Center is a progressive medical practice located in Salt Lake City, Utah, with a focus on Gynecology, Gender affirming hormone therapy, Menopausal syndrome, Sexual health, Mental health, and later in 2023 Ketamine therapy
S-T
SCI Trial Finder Search Tool
Spinal Cord Injury Trials - Home (scitrials.org) Search tool to find active research studies to participate in related to Spinal Cord Injury
Spinal Cord Injury Research Evidence (SCIRE) Professional home - SCIRE Professional (scireproject.com) SCI evidence based research resource
Seniors Blue Book https://seniorsbluebook.com/local/utah Resources for Aging Well
Spinalpedia www.spinalpedia.com The Brain That Changes Itself
Trans Health Project https://transhealthproject.org/resources/academic-gender-centers/ Provides listing of academic gender medical centers
U-Z
Understanding Spinal Cord Injury: A Course for Personal Care Assistants https://kesslerfoundation.org/understanding-spinal-cord-injury-course-personal-care-assistants A free course for helping train personal care assistants on SCI care developed by Kessler Foundation.
United Spinal Association www.unitedspinal.org 800-404-2898 National Spinal Cord Injury Resource
University of Utah Transgender Program https://healthcare.utah.edu/transgender-health/ 801-213-2195
Uspring Research https://uspring.weebly.com/
Alexandra Terrill, PhD
801-581-5951
alex.terrill@hsc.utah.edu
Provides an overview of research projects going on within the Department of Occupational and Recreational Therapies
Utah Community Action https://utahca.org/ Utah Community Action is one of the largest nonprofit agencies dedicated to fighting poverty and its root causes in Utah
Utah Department of Health & Human Services https://dhhs.utah.gov/
Multi-Agency State Office Building
195 North 1950 West
Salt Lake City, Utah
84116
(833) 353-3447 Medicare, Medicaid, Physical Disability Waivers,
VHA LGBTQ+ Health Program https://www.patientcare.va.gov/lgbt/
Yes, You Can Manual! https://pva.org/wp-content/uploads/2021/09/yes-you-can_digital.pdf Guide for people living with SCI and their caregivers from the Paralyzed Veterans of America.
CAREGIVING & SUPPORT
A-C
American Brain Tumor Association https://www.abta.org Brain tumor education on types, tratements and caregiving
American Heart Association (AHA) https://www.heart.org/ A wonderful resource for cardiac and stroke individuals and their families/caregivers. Their website has research, healthy recipes and lifestyle recommendations for heart attack and stroke prevention and care.
Amputee Coalition https://www.amputee-coalition.org/ To support, educate, and advocate for people impacted by limb loss and limb difference.
Aphasia Talking Practice Group
Emily Redd
emily.redd@imail.org
TOSH 5770 South 250 East Murray, UT
Support group for practicing communication every Tuesday from 12-1
BYU Stroke/BI Support Group
801-422-0283
The BYU Speech and Language Clinic Room 177 1190 North 900 East Provo, UT 84604
byutbigroup@gmail.com
Support group through Brigham Young University. Occurs first Thursday of every month from 7:00-8:00 PM.
Care Cure Community https://www.carecure.net/ Forums and articles on SCI related topics and research
Caregiver Action Network http://caregiveraction.org/about Family caregiver resources for patients dealing with chronic injury
Cognitive Skills Group
Emily Redd
emily.redd@imail.org
TOSH 5770 South 250 East Murray, UT
Support group for practicing and learning cognitive skills for those with brain injury.
Compass Counseling and Consulting https://www.cccslc.com/ 801-639-9544 - Mental health services offered both in person and nationally. Also provide free webinar content on mental related topics.
Craig H. Neilsen Foundation https://chnfoundation.org/ The foundation's funding is dedicated to supporting both programs and scientific research to improve the quality of life for those living with spinal cord injury.
D-F
Daybreak Senior Services https://www.daybreakseniorservices.com/
1351 Valley Drive Ogden, UT
801-823-0160
Adult Daycare Services
Division of Services for People with Disabilities (DSPD) https://dspd.utah.gov/services/ Provide a variety of services to individuals with disabilities depending on qualification.
Empower Spinal Cord Injury Camp and Program https://www.empowersci.org/ Camp for individuals with SCI to gain skills and continue reaching rehab goals. Must apply to participate, see website for cost/details.
Encircle https://encircletogether.org/ Support for LGBTQAI+ for youth and young adults
Facing Disability https://facingdisability.com/ Watch videos and/or connect with others living with SCI, their families and health care professionals
Family Caregiver Alliance http://www.caregiver.org Mission is to improve the quality of life for family caregivers and the people who recieve their care. Find quality information, support and resources for caregiving.
G-L
Genderbands https://www.genderbands.org/ OUR MISSION IS SIMPLE: TO HELP TRANSGENDER PEOPLE PAY FOR TRANSITION-RELATED COSTS.
Grief Support Gruops Caring Connections https://nursing.utah.edu/grief-support-groups Support groups for people dealing with loss of a loved one, 8 week course offered quarterly
Help Hope Live https://helphopelive.org/ Medical fundraising resource
Hunstman Cancer Institute Supportive Oncology Survivorship (SOS) https://healthcare.utah.edu/huntsmancancerinstitute/treatment/supportive-oncology-survivorship Work with patients and their families both during and after cancer treatment
Huntsman Mental Health Institute https://healthcare.utah.edu/hmhi 801-583-2500 - Resources related to mental health and the various programs available through HMHI
Intermountain Health Brain Injury/TBI Support Group
Emily Redd
emily.redd@imail.org
Intermountain Medical Center (building 1) 5171 South Cottonwood Street Murray, UT
This support group is for both people with brain injury and their caregivers.
M-N
Meditation Group
Emily Redd
emily.redd@imail.org
TOSH 5770 South 250 East Murray, UT
Lean and practice skills of meditation
National Brain Tumor Society https://braintumor.org/ National website with rsources for clincal trails, brain tumor facts, etc
Neighborhood House https://nhutah.org/ 801-363-4589 - 1050 West 500 South Salt Lake City, UT 84104
Adult day services program for individuals still living at home. Provide recreational therapy interventions, goal setting (cognitive, social, emotional, physical), community outings, speakers, musicians, gardening, and many other activities during the day (full day or a few hours).
New Choices Waiver https://medicaid.utah.gov/ltc-2/nc/ 800-662-9651 option 6, newchoiceswaiver@utah.gov
The New Choices Waiver Program is designed to serve individuals who are residing long term in a nursing facility, licensed assisted living facility, licensed small health care (Type N) facility or another type of Utah licensed medical institution (except institutions for mental disease).
NRH Peer Mentor Program 801-581-2267
P-R
Paralysis Resource Guide https://www.christopherreeve.org/todays-care/living-with-paralysis/free-resources-and-downloads/paralysis-resource-guide/ Created by the Christopher and Dana Reeves Foundation
Plume https://getplume.co/how-it-works/
The groups are intimate and create a safe, cozy space where you can work through some of your big questions. Each group will consist of people who have experiences in common with you, such as people also taking estrogen or testosterone, folks who are Black and trans/nonbinary, and more to come. You’ll meet once a week for six weeks through Zoom.
S-T
Salt Lake County Aging and Adult Services https://slco.org/aging-adult-services/caregiver-support
Cherise Jensen cjjensen@slco.org
385-468-3200
385-468-3280
2001 S State Street STW S1-600, Salt Lake City, UT 84114
This organization/website provides a wide variety of resources for individuals that have experienced stroke as well as their caregivers. Includes information such as: health education, home care, meals on wheels, yard care/snow removal, senior transportation, legal services, Medicare counseling, caregiver support services, volunteer opportunities, senior centers, and job training. Also provides specific resources for caregivers, including the Caregiver Support Program
Seniors Blue Book https://seniorsbluebook.com/local/utah Resources for Aging Well
Spinalpedia www.spinalpedia.com
The Healing Exchange BRAIN TRUST https://braintrust.org Resource for online support groups for caregivers asn well as support groups for various types of tumors
The Utah Food Bank https://utahfoodbank.org Provides food to those in need.
TRAILS https://www.utrails.us/ 801-581-2526 or 801-581-2885 - Adaptive Recreation, Spinal Cord Injury Education & Community
Trans Resources at the U https://lgbt.utah.edu/resources/transresourceindex.php
The LGBT Resource Center is committed to supporting Trans and Gender Non-Conforming (GNC) students, faculty, and staff at the University of Utah. Below you will find a list of Trans/GNC resources available at the U
Transgender Care Listings http://transcaresite.org/ Provides resource list that can be filtered by state, procedure or other trans specific needs
U-Z
Understanding Spinal Cord Injury: A Course for Personal Care Assistants https://kesslerfoundation.org/understanding-spinal-cord-injury-course-personal-care-assistants A free course for helping train personal care assistants on SCI care developed by Kessler Foundation.
United Spinal Association www.unitedspinal.org 800-404-2898 - National Spinal Cord Injury Resource
Uniting Caregivers: Your Pathway of Support https://unitingcaregivers.worldpress.com/
University of Utah Neurologic Injury Support Group healthcare.utah.edu/locations/sugar-house/rehab-therapy
801-581-2221
1280 E Stringham Ave, Salt Lake City, UT 84106
sydney.beadles@hsc.utah.edu, joshua.holland@hsc.utah.edu or kara.tucker@hsc.utah.edu
Support group through the University of Utah. Occurs second Tuesday of each month from 6:15-7:15 PM.
Utah Department of Health & Human Services https://dhhs.utah.gov/
Multi-Agency State Office Building
195 North 1950 West
Salt Lake City, Utah
84116
(833) 353-3447
Medicare, Medicaid, Physical Disability Waivers,
Utah Independent Living Center https://uilc.org/en/ 801-466-5565
3445 S Main Street, Salt Lake City, UT 84115
Provides services, activities, and advocacy to enhance independent living skills of those with disabilities.
Utah State University Aphasia Group
Laura Schmitt
Laura.schmitt@usu.edu
435-797-9059
Meets every Friday @ 1:00
Sorensen Center of Clinical Excellence USU Speech and Lnaguage Clinic 6405 Old Main Hill Logan, UT
WAGS of SCI https://wagsofsci.com/
Plus wagsofsci instragram A group for wives and girlfriends of individuals with SCI. Resources available on their website, in addition to Instagram and Facebook groups.
Housing, Transportation & Equipment
A-D
Ability Found https://www.abilityfound.org/ Mobility equipment for those in need
Accessible Systems is now Lifeway Mobility https://www.lifewaymobility.com/accessible-systems/ Resource for stair lifts, platform lifts, elevators, bathroom equipment and ramps
ACLU of Utah https://www.acluutah.org/
Air Care Alliance https://www.aircarealliance.org/ Free air travel for those in need to access medical care.
Air Charity Network https://aircharitynetwork.org/ Free air travel for US citizens in need to access medical care.
Airbnb https://www.airbnb.com/salt-lake-city-ut/stays Short and long-term rental options. Typically come furnished and include all utilities.
Alpine Home Medical https://www.alpinehomemedical.com/ Resource for medical supplies and home equipment
American Occupational Therapy Association (AOTA) Driving Rehab Provider Search https://myaota.aota.org/driver_search/ Search for certified driving rehab specialists in your area.
Amramp https://amramp.com/ Accessible ramps to rent or purchase. Can also provide some lift systems and bathroom equipment.
Angel Flights https://angelmedflight.com/ This service provides private air transportation for individuals to help access medical care.
Apartment Guide www.apartmentguide.com Find apartments and houses for rent.
ASSIST – Emergency Home Repair Program Assist, Inc.
Andres Calderon
801-355-7085
Provides housing repairs to lower income housing, based on inspection.
ASSIST Community Design Center: The Assist Guidebook to the Accessible Home https://assistutah.org/wp-content/uploads/2015/12/Guidebook.pdf Great home modification resource guide
Association for Driver Rehabilitation Specialists (ADED) https://www.aded.net/page/725 Search here to locate Driving Rehab Specialists in your area.
Craigslist https://www.craigslist.org/about/sites Search for available apartments and/or homes to rent.
E-G
Equity Utah https://www.equalityutah.org/mission 801-355-3489 - Utah LGBTQAI+ civil rights organization
Flying Angels https://www.flyingangels.com/ Non emergency medical transport with nurse to accompaniment on commercial flights
George E. Wahlen Ogden Veterans Home https://avalonhealthcare.com/ogden/
1102 N 1200 W
Ogden, UT 84404
Phone: 801-334-4300
Fax: 801-392-2172
Website includes an enrollment form.
Give A Mile https://giveamile.org/ A program to provide plane tickets to be with loved ones at end of life for those in need.
Go Medical https://gomedicalonline.com/?srsltid=AfmBOopwrIRshafIOAe4GRSmdhWcJMlC4_JcHegZCpiREU12hzZ-jkyY An online medical supply wholesaler who offers urological, ostomy, incontinence, wound and other medical supplies.
H-K
Harrison Pointe Healthcare & Rehabilitation https://harrisonpointehealthcare.com/
3430 Harrison Blvd.
Ogden, UT 84403
Ph: 801-399-5609
VAIH Contracted Facility
Help Hope Live https://helphopelive.org/ Medical fundraising resource
Heritage Park Healthcare & Rehab https://heritageparkrehab.com/
2700 W 5600 S
Roy, UT 84067
Ph: 801-825-9731
Admission: 628-5876
Fax: 801-728-4224
VAIH Contracted Facility
Secure Unit, North
Holladay Healthcare Center https://holladayhealthcare.net/
4782 S. Holladay Blvd.
Holladay, UT 84117
PH: 801-277-7002
Fax: 801-272-0622
VAIH Contracted Facility
Nonsmoking, No motorized wheelchairs, Secure Unit
Idaho State Veterans Home https://veterans.idaho.gov/
1957 Alvin Ricken Dr
Pocatello, ID
Ph: 208-235-7800
Independent Me, Inc.
Jenny Smith
801-721-3788
Assists with purchasing medical equipment that is not able to be funded otherwise. Does require a therapist to recommend equipment.
KSL Handicap Accessible https://homes.ksl.com/rent/search/ut/salt-lake-city/homeamenities-handicap-accessible
L
Local Accessible Vans & Vehicle Modification Companies (accessible vans pdf from Rehab Educators)
801-585-3330 or 801-646-8942
Compassion Mobility
https://compassionmobility.com/
1819 N Main St. #9, Spanish Fork, UT 84660 385-279-4447
Mobility Solutions, Inc
231 Cottage Ave., Sandy, UT 84070 801-566-3199
ParaQuad Automobility
2572 S West Temple, South Salt Lake City, UT 84115 801-487-0111
United Access
877-203-9150 info@unitedaccess.com
Wheelchair Getaways
https://www.accessiblevans.com/locations
M
Mervyn Sharp Bennion Central Utah Veterans Home https://avalonhealthcare.com/payson/
1551 N Main Street
Payson, UT 84651
Phone: 801-465-5400
Fax: 801-465-4872
Website includes an enrollment form.
Midtown Manor
125 S 900 W
Salt Lake City, UT 84104
Ph: 8001-363-6340
Fax: 801-355-2006
VAIH Contracted Facility
Facility is secured with a secured unit
Modivcare https://www.mymodivcare.com/ Provides transportation including wheelchair accessible vans
Mt. Olympus Rehabilitation Center https://mtolympusrehab.com/
2200 E 3300 S
Salt Lake City, UT 84109
Ph: 801-486-2096
Fax: 801-486-0105
VAIH Contracted Facility
Wander-Guard System
N-P
National Center for Transgender Equality https://transequality.org/ (202) 642-4542 -NCTE was founded in 2003 by transgender activists who recognized the urgent need for policy change to advance transgender equality
Paratransit https://www.rideuta.com/Rider-Info/Accessibility/Accessible-UTA/Paratransit-Services For people who are unable to utilize public transport because of physical or cognitive reasons. Must go through an evaluation process to qualify.
Patient and Family Housing https://healthcare.utah.edu/locations/patient-family-housing Provides lodging for patients and families during their hospitalization within University Health Care System including Hunstman Cancer Institute.
R-S
Rentler www.rentler.com
Rides For Wellness https://slco.org/aging-adult-services/senior-transportation/ Provides rides to and from medical appointments, must be 60 or older
Salt Lake City International Airport www.slcairport.com
Mark Cheminant
ADA Coordinator
mark.cheminant@slcgov.com
801-575-2909; Brooke Orgill, SLC Airport Operations Supervisor brooke.orgill@slcgov.com, 801-575-2850
Contact to coordinate a guided experience to learn how to navigate SLC airport and air travel with a disability
Salt Lake County Aging and Adult Services https://slco.org/aging-adult-services/caregiver-support
Cherise Jensen cjjensen@slco.org
385-468-3200
385-468-3280
2001 S State Street STW S1-600, Salt Lake City, UT 84114
This organization/website provides a wide variety of resources for individuals that have experienced stroke as well as their caregivers. Includes information such as: health education, home care, meals on wheels, yard care/snow removal, senior transportation, legal services, Medicare counseling, caregiver support services, volunteer opportunities, senior centers, and job training. Also provides specific resources for caregivers, including the Caregiver Support Program
Salt Lake County Housing and Community Development https://slco.org/housing-community-development/home-rehab-repairs-and-housing-development/
385-468-4901
2001 South State Street, S2-100, Salt Lake City, UT, 84114
Provides overview of local home rehabilitation services, must qualify on low-income status.
Sandstone Healthcare Center American Fork https://sandstonehc.com/locations/american-fork/
350 E 300 N
American Fork, UT 84003
Ph: 801-756-5293
Fax: 801-756-8705
VAIH Contracted Facility
Secure Unit
Sandstone Healthcare Center Brigham City https://sandstonehc.com/locations/brigham-city/
775 N 200 E
Brigham City, UT 84302
Ph: 435.723.7777
Fax: 435.723.8773
VAIH Contracted Facility
Wander-Guard System
Sandstone Healthcare Center Millcreek https://sandstonehc.com/locations/millcreek/
3855 S 700 E
SLC, UT 84106
Ph: 801.268.4766
Fax: 801.883.8934
VAIH Contracted Facility
Wander-Guard System
Vent/Trach, High Flow O2
Sandstone Healthcare Center Nephi https://sandstonehc.com/locations/nephi/
1100 N 400 E
Nephi, UT 84648
Ph: 435-623-1721
Fax: 435-623-5821
VAIH Contracted Facility
Facility is secured
Southern Utah Veteran Home https://avalonhealthcare.com/ivins/
160 North 200 East
Ivins, UT 84738
Phone: 435-634-5220
Fax: 435-673-5839
Website includes an enrollment form.
T-U-V
Tender Care Home Health and Hospice https://www.homewithmission.com/locations/tender-care/
1751 W Alexander St.
Suite 106
West Valley, UT 84119
801-335-0522
Skilled Nursing Care, PT, OT, SLP, Home Health Aids, Medical Social Worker, DME
Tooele County Housing Authority https://housingtc.org/ (435)882-7875
66 West Vine Street Tooele, UT 84074
Transgender Law Center https://transgenderlawcenter.org/ 510-587-9696 - Transgender Law Center is the largest national trans-led organization advocating self-determination for all people
TSA Cares tsa.gov/travel/passenger-support
https://www.tsa.gov/contact-center/form/cares 855-787-2227 - Assist passengers navigating the airport through security, contact your airline directly for wheelchair assistance
United Access https://www.braunability.com/unitedaccess/us/en.html Wheelchair Accessible Rental and Purchase Options
University Guest House https://universityguesthouse.com/University-Guest-House Provides lodging for patients and families during their hospitalization within University Health Care System including Huntsman Cancer Institute.
University of Utah Hospital and Clinics Preferred Lodging List https://healthcare.utah.edu/documents/hotel-accommodations-salt-lake-city-university-of-utah-health-2-2023
UTA on Demand https://www.rideuta.com/Services/UTA-On-Demand app based as well - transportation options in Salt Lake area, is also wheelchair accessible
Utah Community Action https://utahca.org/ Utah Community Action is one of the largest nonprofit agencies dedicated to fighting poverty and its root causes in Utah
Utah Independent Living Center https://uilc.org/en/ 801-466-5565
3445 S Main Street, Salt Lake City, UT 84115
Provides services, activities, and advocacy to enhance independent living skills of those with disabilities.
Idaho Centers for Independent Living https://silc.idaho.gov/idaho-centers-for-independent-living/
Montana https://dphhs.mt.gov/detd/independentliving/Center
W-Z
Wheelchair Getaways https://www.wheelchairgetaways.com/ Short Term Wheelchair Accessible Rental Options
William E Christofferson Salt Lake Veterans Home https://avalonhealthcare.com/slveterans/
700 Foothill Blvd
SLC, UT 84113
Phone: 801-584-1900
Fax: 801-584-1960
Website includes an enrollment form.
Driving Assessment https://healthcare.utah.edu/locations/sugar-house/rehab-therapy/drive-rehab-program 801-581-2221 Driving Assessment - Local Accessible Vans & Vehicle Modification Companies Resource List
See accessible Vans pdf from Rehab Educators 801-585-3330 or 801-646-8942
Compassion Mobility https://compassionmobility.com/ 1819 N Main St. #9, Spanish Fork, UT 84660 385-279-4447 - Accessible Vans for sale
Mobility Solutions, Inc https://www.msiutah.com/ 231 Cottage Ave., Sandy, UT 84070 801-566-3199 - Accessible Vans for Sale, Hand Controls and Seating Solutions
MobilityWorks https://www.mobilityworks.com/
68 E 3300 S, South Salt Lake, UT 84115
801-988-6548
Accessible vans for sale or rental,
ParaQuad Automobility https://paraquad.com/ 2572 S West Temple, South Salt Lake City, UT 84115 801-487-0111 - Accessible Vans for sale and Vehicle Modifications
United Access https://www.unitedaccess.com/ 877-203-9150 info@unitedaccess.com - Accessible Vans for Sale & Rental Options
Wheelchair Getaways https://www.accessiblevans.com/locations Accessible Van Rentals
Education & Employment
A-C
ABLE National Resource Center https://www.ablenrc.org/ Their mission is to educate, promote and support achieving a better life experience (ABLE) act for individuals with disabilities and their families.
Accessible College http://acessiblecollege.com Provides consultation and resources to individuals with disabilities transitioning to higher education
Amputee Coalition https://www.amputee-coalition.org/ To support, educate, and advocate for people impacted by limb loss and limb difference.
California Vocational Rehabilitation https://www.dor.ca.gov/Home/VocationalRehabilitation Free program to assist with returning to work or school. Can also assist with independent living, assistive technology and career counseling.
Craig H. Neilsen Foundation https://chnfoundation.org/ The foundation's funding is dedicated to supporting both programs and scientific research to improve the quality of life for those living with spinal cord injury.
Craig H. Neilsen Scholarship https://chnfoundation.org/programs/neilsen-scholarship-program/ Scholarship program for individuals with spinal cord injuries.
D-F
Facing Disability https://facingdisability.com/ Watch videos and/or connect with others living with SCI, their families and health care professionals
G-M
Model Systems Knowledge Translation Center https://msktc.org/ Research Based Rehabilitation Resources
Montana Vocational Rehabilitation https://dphhs.mt.gov/detd/vocrehab/
N-P
Nevada Vocational Rehabilitation https://detr.nv.gov/Page/Vocational_Rehabilitation
Paralysis Resource Guide https://www.christopherreeve.org/todays-care/living-with-paralysis/free-resources-and-downloads/paralysis-resource-guide/ Created by the Christopher and Dana Reeves Foundation
Q-S
Spinal Cord Injury Research Evidence (SCIRE) Professional home - SCIRE Professional (scireproject.com) SCI evidence based research resource
Seniors Blue Book https://seniorsbluebook.com/local/utah Resources for Aging Well
Spinalpedia www.spinalpedia.com
T-U
Utah Community Action https://utahca.org/ Utah Community Action is one of the largest nonprofit agencies dedicated to fighting poverty and its root causes in Utah
Utah Department of Health & Human Services https://dhhs.utah.gov/
Multi-Agency State Office Building
195 North 1950 West
Salt Lake City, Utah
84116
(833) 353-3447
Medicare, Medicaid, Physical Disability Waivers,
Utah Department of Workforce Services https://jobs.utah.gov/ or dwscontactus@utah.gov, 801-526-WORK (9675) Website provides information about applying for temporary assistance, including disability services (e.g., vocational rehabilitation). Services are also provided that help determine medical eligibility for social security disability claims.
V-Z
Vocational Rehabilitation ID https://vr.idaho.gov/
844-324-3983
650 West State Street Room 150 Boise, ID 83720
Job retraining and resources information to return to work.
Vocational Rehabilitation MT https://dphhs.mt.gov/detd/vocrehab/
877-296-11197
111 North Last Chance Gulch Suite 4C Helena, MT 59604
Job retraining and resources information to return to work.
Vocational Rehabilitation WY https://dws.wyo.gov/dws-division/vocational-rehabilitation/ 307-777-8650
5221 Yellowstone Road Cheyenne, WY 82002 - Job retraining and resources information to return to work.
Vocational Rehabiltiation NV https://detr.nv.gov/Page/Rehabilitation_Division_Bureau_of_Vocational_Rehabilitation
Southern NV: 702-486-5230
Northern NV: 775-687-6860
Job retraining and resources information to return to work.
Vocational Rehabiltiation UT https://jobs.utah.gov/usor/vr/index.html 801-526-WORK (9675) Job retraining and resources information to return to work.
Work Ability Utah https://jobs.utah.gov/usor/vr/pathways.html
Aaron Thompson, Rehabilitation Services Director athompson@utah.gov or Leah Lobato, Director, Govenor's Committee on People with Disabilities & Business Relations Director leahlobato@utah.gov
Strives to increase employment and health care outcomes for individuals with disabilities in Utah.
Wyoming Vocational Rehabilitation https://dws.wyo.gov/dws-division/vocational-rehabilitation/
Recreation & Leisure
Challenged Athletes Foundation www.ChallengedAthletes.org 858-866-0959 - Grants for adaptive sports equipment; Grant application period generally runs September-early November
National Ability Center National Ability Center - Adaptive Recreation and Adventure
435-649-3991
1000 Ability Way, Park City, UT 84060
info@discovernac.org - Provides sport, recreation and educational programs.
Paralysis Resource Guide
https://www.christopherreeve.org/todays-care/living-with-paralysis/free-resources-and-downloads/paralysis-resource-guide/ Created by the Christopher and Dana Reeves Foundation
TRAILS
https://www.utrails.us/ 801-581-2526 or 801-581-2885 - Adaptive Recreation, Spinal Cord Injury Education & Community
Visit Utah: Accessible Recreation Guide for Utah
https://www.visitutah.com/plan-your-trip/accessible-utah
Wasatch Adaptive Sports
Home - Wasatch Adaptive Sports 801-933-2188
Snowbird Ski and Summer Resort, 9385 S, Snowbird Center Dr., Snowbird, Utah 84092
info@wasatchadaptivesports.org Provides adaptive sport programming. This includes year-round recreational, educational, and social programs. Requires no initial fee and provides full or partial scholarships
Parenting & Sex
Helpful Tools and Tips
Please note the resources provided in this list may not reflect the values or beliefs of Neilsen Rehabilitation Hospital. Always seek medical advice from a physician.
- Craig Hospital Tools & Tips for Parenting a Baby with an SCI
- healthychildren.org
- lookingglass.org
- disabledparents.net
- disabledparenting.com
- Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children
- Parenting with a Disability: Know Your Rights Toolkit
- Utah Parent Center
- Sex, Love, and Intimacy after SCI
- Is Fred Dead? A Manual on Sexuality for Men with Spinal Cord Injuries (book)
- The Ultimate Guide to Sex and Disability: For All of Us Who Live with Disabilities, Chronic Pain, and Illness (book)
Patty Brisben Foundation Welcome - The Patty Brisben Foundation Research and education on women's sexual health
PleasureABLE: Sexual device manual for persons with disabilities PleasureABLE-Sexual-Device-Manual-for-PWD.pdf (icord.org) Examples of how to engage in intimacy with a disability.
SCI Sexual Health British Columbia (BC) Spinal Cord Injury Sexual Health Website - Sex and SCI (scisexualhealth.ca) Great resource on all topics related to sexual health and parenting with SCI out of Canada.
The Sexual Health Network https://www.drmitchelltepper.com/sex_and_paralysis_video_series Dr. Mitchell Temper's Sex and Paralysis Video Series
WAGS of SCI https://wagsofsci.com/
Plus wagsofsci instragram A group for wives and girlfriends of individuals with SCI. Resources available on their website, in addition to Instagram and Facebook groups.
More Sex Health Resources
A-C
ACLU of Utah https://www.acluutah.org/
D-E
Encircle https://encircletogether.org/
Equity Utah https://www.equalityutah.org/mission
801-355-3489
F-G
Genderbands https://www.genderbands.org/
H-J
Jim Collins Foundation https://jimcollinsfoundation.org/apply/
K-L
LGBTQ+-Affirmative Therapist Guild of Utah http://www.lgbtqtherapists.com/index.html
M-O
National Center for Transgender Equality https://transequality.org/
(202) 642-4542
Out2Enroll https://out2enroll.org/
P-Q
Plume https://getplume.co/how-it-works/
Point of Pride
https://www.pointofpride.org/annual-transgender-surgery-fund
R-T
Rebirth Health Center https://rebirthhealthcenter.com/
801-272-3909
Trans Health Project
https://transhealthproject.org/resources/academic-gender-centers/
Trans Resources at the U
https://lgbt.utah.edu/resources/transresourceindex.php
Transgender Care Listings http://transcaresite.org/
Transgender Law Center https://transgenderlawcenter.org/
510-587-9696
TransMission-The Loft https://www.loftgaycenter.org/transmission
U-Z
University of Utah Transgender Program
https://healthcare.utah.edu/transgender-health/
801-213-2195
Utah Pride Center https://utahpridecenter.org/
VHA LGBTQ+ Health Program https://www.patientcare.va.gov/lgbt/
Veterans Care Resources
Hunter Seven Foundation https://hunterseven.org/ Research, education and assistance for veterans with cancer.
Idaho State Veterans Home https://veterans.idaho.gov/
1957 Alvin Ricken Dr
Pocatello, ID
Ph: 208-235-7800
The Independence Fund https://independencefund.org/ Mobility, caregiving, family and adovacy programing available.
VHA LGBTQ+ Health Program https://www.patientcare.va.gov/lgbt/
Yes, You Can Manual! https://pva.org/wp-content/uploads/2021/09/yes-you-can_digital.pdf Guide for people living with SCI and their caregivers from the Paralyzed Veterans of America.
Hope & Motivation
A-B
A Wonderful Stroke of Luck: From Occupational Therapist to Patient and Beyond - Book by Janet R. Douglas
Adaptive Parent Project - Instagram
Woman with cerebral palsy that primarily uses as manual wheelchair - Social Media
Any One of Us (2019) - Movie
Documentary of a professional mountain biker that had a SCI
Breathe (2017) - Movie - Based on a true story of a couple, husband uses a ventilator due to polio
Brittany Fisher Frank - Instagram Social Media
C-E
Daniizzie - Instagram Social Media
Empower Spinal Cord Injury Camp and Program https://www.empowersci.org/ Camp for individuals with SCI to gain skills and continue reaching rehab goals. Must apply to participate, see website for cost/details.
Endless Abilities: The story of our ability to adapt, our ability to love (2013) - Movie - Documentary focused on adaptive recreation
F-G
Facing Disability - Facebook Group Social Media
Facing Disability https://facingdisability.com/ Watch videos and/or connect with others living with SCI, their families and health care professionals
Full Catastrophe Living - Book by Jon Kabat-Zinn
H-J
Joni: An Unforgettable Story - Joni Eareckson Tada, Joe Musser - Book
Just Don’t Fall: How I Grew Up, Conquered Illness, and Made It Down the Mountain - Josh Sundquist - Book
L-M
Life Between Two Gardens: Finding Purpose and Embracing Hope Amid Life’s Greatest Challenges Book by Steven Edgely, MD
Living with Stroke: A Guide for Patients and Their Families - Book by Richard, C. Senelick, MD
Luckey (2008) Movie - Documentary of a paralyzed artist
Mama Zooms (Children's Book) Jane Cowen-Fletcher by Book
Mindfulness: An Eight-Week Plan for Finding Peace in a Frantic World - Book by Mark Williams & Danny Penman
Murderball (2005) Movie - Documentary of the Paralympic tetraplegic rugby team
My Stroke of Insight: A Brain Scientist's Personal Journey - Book by Jill Bolte Tayler, PhD
O-P
Paralysis Resource Guide Created by the Christopher and Dana Reeves Foundation https://www.christopherreeve.org/todays-care/living-with-paralysis/free-resources-and-downloads/paralysis-resource-guide/
Q-R
Quad Gods (movie) Available on HBO Max Documentary film about an e-sports team with tetraplegia from New York
Resilient.comm - Instagram Social Media
Roll.with.cole - Instagram Social Media
RollingwithLina - Instagram Social Media
S-T
Sitting Pretty: The View from My Ordinary Resilient Disabled Body - Rebekah Taussig - Book
SittingPretty Instagram Social Media
Spinalpedia www.spinalpedia.com
The Headspace Guide of Meditation and Mindfulness: How Mindfulness Can Change your Life in Ten Minutes a Day - Book by Andy Puddicombe
The Other Side of the Mountain (1975) Movie -Based on a true story of a young ski champion that has an accident resulting in a SCI while her friend has a similar presentation after contracting polio.
The Power of Now - Book by Eckart Tolle
The Upside (2017) Movie - Based on a true story, a wealthy man with tetraplegia and his relationship with his caregiver
Thriving After Your Stroke: Rebuilding the Mind and Body to Create a Meaningful Life - Book by Steven Edgely, MD
U-Z
Unbeaten (2009) Movie - Documentary of 31 individuals with paraplegia doing the toughest road race in the world using hand cycles
Unite 2 Fight Paralysis https://u2fp.org/ Unite 2 Fight Paralysis exists to unite and empower the international spinal cord injury community to cure paralysis through advocacy, education, and support for research.
WAGS of SCI
https://wagsofsci.com/
Plus wagsofsci instragram
A group for wives and girlfriends of individuals with SCI. Resources available on their website, in addition to Instagram and Facebook groups.
Wheel Mommies
Facebook Group/Social Media
When I Walk (2013) Movie - Documentary about a man with MS and his journey
Wherever You Go, There You Are - Book by Jon Kabat-Zinn
Women on Wheels Support Group womenonwheelsnyc - instragram
A support group for women with SCI, based out of NY with many virtual offering
YouTube Channels for SCI Content
https://www.youtube.com/@ParalyzedLiving
https://www.youtube.com/@KeepOnRollin
https://www.youtube.com/@TheWheelchairDad
ParalyzedLiving
@Keeponrollin
@Thewheelchairdad
Videos on transfers, everyday tips for living with paralysis
Just Don’t Fall: How I Grew Up, Conquered Illness, and Made It Down the Mountain - Book by Josh Sundquist
Mama Zooms (children's book)
Jane Cowen-Fletcher - A boy's wonderful mama takes him zooming everywhere with her, because her wheelchair is a zooming machine.
Sitting Pretty: The View from My Ordinary Resilient Disabled Body - Book by Rebekah Taussig
Adapted Clothing & Personal Care
Patti + Ricky Adaptive Clothing
303-578-6594; TTY 1-800-439-2370; info@pattiandricky.com
Rebound Wear https://www.reboundwear.com
(646) 688-3450; info@reboundwear.com
Smart Adaptive Clothing https://smartadaptiveclothing.com
(267) 818 – 4407; info@smartadaptive.com
Bobby the Bladder (interactive animation for bladder management education)
Books to Read
Reading Recommendations
Please note the books provided in this resource list may not reflect the values or beliefs of Neilsen Rehabilitation Hospital. Always seek medical advice from your physician.
- A Wonderful Stroke of Luck: From Occupational Therapist to Patient and Beyond - Book by Janet R. Douglas
- Full Catastrophe Living - Book by Jon Kabat-Zinn
- Life Between Two Gardens: Finding Purpose and Embracing Hope Amid Life’s Greatest Challenges - Book by Steven Edgely, MD
- Living with Stroke: A Guide for Patients and Their Families - Book by Richard, C. Senelick, MD
- Joni: An Unforgettable Story
- Just Don't Fall: How I Grew Up, Conquered Illness, and Made It Down the Mountain
- Mama Zooms (Children's Book)
- Sitting Pretty: The View from My Ordinary Resilient Disabled Body
- Is Fred Dead? A Manual on Sexuality for Men with Spinal Cord Injuries - Book Robert W. Baer (2004)
- The Ultimate Guide to Sex and Disability: For All of Us Who Live with Disabilities, Chronic Pain, and Illness -Book By Miriam Kaufman, Cory Silverberg and Fran Odette (2007)
Mindfulness
- The Mindful Way Through Depression - Book Mark Williams, John Teasdale, Zindel Segal, & Jon Kabat-Zinn
- Mindfulness in Plain English - Book Bhante Gunaratana
- Guided Mindfulness Meditation - Series 1, 2 & 3 Audible Jon Kabat-Zinn
- Mindfulness: An Eight-Week Plan for Finding Peace in a Frantic World - Book by Mark Williams & Danny Penman
- The Headspace Guide of Meditation and Mindfulness: How Mindfulness Can Change your Life in Ten Minutes a Day - Book by Andy Puddicombe
Movies & Videos to Watch
Please note the movies and videos provided in this list may not reflect the values or beliefs of Neilsen Rehabilitation Hospital. Always seek medical advice from your physician.
- Any One of Us (2019)—Documentary of a professional mountain biker that had a spinal cord injury
- Breathe (2017)—Based on a true story of a couple where the husband is on a ventilator due to polio
- The Upside (2017)—Based on a true story, a wealthy man with tetraplegia and his relationship with his caregiver
- Endless Abilities (2013)—Documentary focused on adaptive recreation
- When I Walk (2013)—Documentary about a man with multiple sclerosis and his journey
- Unbeaten (2009)—Documentary of 31 individuals with paraplegia who are hand-cycling the toughest road race in the world
- Luckey (2008)—Documentary of a paralyzed artist
- Murderball (2005)—Documentary of the Paralympic tetraplegic rugby team
- The Other Side of the Mountain (1975)—Based on a true story of a young ski champion who has an accident resulting in a spinal cord injury while her friend has a similar presentation after contracting polio
- Quad Gods (movie) Available on HBO Max - Documentary film about an e-sports team with tetraplegia from New York
- spinalpedia.com
- Paralyzed Living
- Meg Johnson
- The Wheelchair Dad
Online apps
Big Magnify Free App
Calm App
Come Back Strong App
DownDog App
Elevate App
Glasses App
Habatica App
Headspace App
Lumosity App
Medisafe App
Peak App
UCLA Mindful App
Vocal Eyes App
Waking Up App
PDF Documents
PDFs are available from Neilsen Rehabilitation Patient Educators
Ask an educator for documents on VA and travel support
ASSIST Community Design Center: The Assist Guidebook to the Accessible Home Great home modification resource guide.
PleasureABLE: Sexual device manual for persons with disabilities Examples of how to engage in intimacy with a disability.
Yes, You Can! yes-you-can_digital.pdf Guide for people living with SCI and their caregivers from the Paralyzed Veterans of America.
The National Council on Disability:
- Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children
- Parenting with a Disability: Know Your Rights Toolkit
https://acrobat.adobe.com/id/urn:aaid:sc:VA6C2:e56e3f90-b88b-4a15-b160-a1c69095900c
-
What is Central Cord Syndrome?
FLUIDS: CAN I GET YOU A DRINK?
Pregnancy Following Spinal Cord Injury
Sexual Function Following Spinal Cord Injury
Preventing Skin Problems cont.
Smoking and Spinal Cord Injury
Body Temperature Regulation Thermoregulation
Understanding and Managing Areflexic Bowel
WHAT IS GUILLAIN-BARRE SYNDROME?
What is Multiple Sclerosis (MS)?
WHY IS IT HARD TO HAVE A BOWEL MOVEMENT? NEUROGENIC BOWEL DYSPHAGIA
NEUROGENIC BOWEL Why is it Hard to Have a Bowel Movement?
-
Un día en la vida con lesiones medulare A Day in the Life - Spanish
VEHÍCULOS ACCESIBLES Accessible Vans
Viajes al aeropuerto Air Travel
LA MÉDULA ESPINAL Anatomy and SCI
¿Qué es el síndrome del cordón central? Central Cord Syndrome
ADAPTACIONES DE CONDUCCIÓN Driving Adaptations
PROGRAMA PARA EL MANEJO DE LA VEJIGA Managing Your Bladder Program
COMIDA PARA LA COLUMNA VERTEBRAL Nutrition Fluids
Paternidad Parenting
Guía de referencia rápida sobre LME SCI Quick Reference Guide
Juguetes sexuales y posiciones Sex Toys and Positioning
Función sexual tras una lesión medular Sexual Function Men
Función sexual tras una lesión medular Sexual Function Women
¿QUÉ ES LA RUPTURA DE LA PIEL? Skin Breakdown Prevention
Espasticidad Spasticity
CATÉTERES SUPRAPÚBICOS Suprapubic
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Comprender y manejar el intestino arrefléxico What is Areflexic Bowel?
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